Sunday, February 3, 2008

Transition :-<

Nothing new to report today. We have just been trying to keep him relaxed so his HR stays down. There is a new admit that needs our spacious isolation room that we have become so comfortable in. We are now moved down the hall to unlucky 13 which is really just a space in a big room. Another transition we will be adjusting to is the change in staff. The doctors we have become so attached to will be going off service today so we will need to get to know others starting tomorrow. It's hard when you have gone through so much with one doctor to adjust but we will.


Kelly said...

You know...13 is just a number. I declare that this is Charlie's favorite number. He is gonna do so well and recuperate so quickly now. He's with other kids and they can all cheer each other on. Plus, all the praying and fasting that has been occuring can be felt by all the little children who need it in that room. Their prayers will also reach your little boy! It's all about sharing. Share the love, share your toys, why not share the prayers?

I'm praying for you guys! And for Charlie and his new friends too!

Sallie said...

Charlie, I have been keeping an eye on your blog all weekend. It is good to know that there is at least some small progress. I know you are tired and things are hard right now, but keep getting better. Fight like heck little man! You are in my daily thoughts and prayers.

Suz said...

Norma sent e-mailed the following story to me today. We have both read it before but it sure has a new relavance now. We are both sure that Cooper is smelling the rain right now! Thanks Norma.

A cold March wind danced around the dead of night in Dallas as the doctor walked into the small hospital room of Diana Blessing. She was still groggy from surgery.
Her husband, David, held her hand as they braced themselves for the latest news.
That afternoon of March 10, 1991, complications had forced Diana, only 24-weeks pregnant, to undergo an emergency Cesarean to deliver couple's new daughter, Dana Lu Blessing. At 12 inches long and weighing only one pound nine ounces, they already knew she was perilously premature.
Still, the doctor's soft words dropped like bombs. 'I don't think she's going to make it,' he said, as kindly as he could. 'There's only a 10-percent chance she will live through the night, and even then, if by some slim chance she does make it, her future could be a very cruel one' Numb with disbelief, David and Diana listened as the doctor described the devastating problems Dana would likely face if she survived. She would never walk, she would never talk, she would probably be blind, and she would certainly be prone to other catastrophic conditions from cerebral palsy to complete mental retardation, and on and on.
'No! No!' was all Diana could say.
She and David, with their 5-year-old son Dustin, had long dreamed of the day they would have a daughter to become a family of four. Now, within a matter of hours, that dream was slipping away But as those first days passed, a new agony set in for David and Diana. Because Dana's underdeveloped nervous system was essentially 'raw', the lightest kiss or caress only intensified her discomfort, so they couldn't even cradle their tiny baby girl against their chests to offer the strength of their love. All they could do, as Dana struggled alone beneath the ultraviolet light in the tangle of tubes and wires, was to pray that God would stay close to their precious little girl.

There was never a moment when Dana suddenly grew stronger. But as the weeks went by, she did slowly gain an ounce of weight here and an ounce of strength there. At last, when Dana turned two months old. her parents were able to hold her in their arms for the very first time. And two months later, though doctors continued to gently but grimly warn that her chances of surviving, much less living any kind of normal life, were next to zero, Dana went home from the hospital, just as her mother had predicted.

Five years later, Dana was a petite but feisty young girl with glittering gray eyes and an unquenchable zest for life. She showed no signs whatsoever of any mental or physical impairment. Simply, she was everything a little girl can be and more. But that happy ending is far from the end of her story.

One blistering afternoon in the summer of 1996 near her home in Irvin, Texas, Dana was sitting in her mother's lap in the bleachers of a local ball park where her brother Dustin's baseball team was practicing. As always, Dana was chattering nonstop with her mother and several other adults sitting nearby when she suddenly fell silent. Hugging her arms across her chest, little Dana asked,'Do you smell that?' Smelling the air and detecting the approach of a thunderstorm, Diana replied, 'Yes, it smells like rain.' Dana closed her eyes and again asked, 'Do you smell that?' Once again, her mother replied, 'Yes, I think we're about to get wet. It smells like rain.' Still caught in the moment, Dana shook her head, patted her thin shoulders with her small hands and loudly announced,
'No, it smells like Him. It smells like God when you lay your head on His chest.'

Tears blurred Diana's eyes as Dana happily hopped down to play with the other children.

Marilee said...

Nothing new is good news. The changes only mean you have to remain your child's strongest advocate. You have done a great job so far, so I know you are up the task.
Thanks for the updates. I appreciate them more than you know.

Ginny said...

I second the thanks for the updates. Every time I am near the computer I jump on just to see if there is anything new. You guys are amazing!

Ginny Wood

Marilee said...

Wow! Faith ya'll. Faith

Anonymous said...

I have been sitting here at the hospital for almost a week now and continue to be amazed by so many things that I have a difficult time putting into words. First; the extreem fight that is in our little Charlie Cooper. He has a purpose and it is important that he stay here and finish his purpose. He is fighting harder than words can even express. Second; The "over the top" outpouring of love and concern is truly overwelming. It is a tribute to Rob and Angel, not to mention very comforting that so many are in their corner fighting for Charlie to continue with us. And third; How can anyone say thank you for what happened on a little house in West Bountiful this week? I know that the house was built with more love than anyone can imagine. It will be a warm and inviting place that all are welcome to and instead of just being a house it will be a home truly built with love. Angel and Rob will always feel that love with them as they carry on their daily chores.
I can't say "thank you" enough to all of you. I have witnessed many great things this week and am so grateful to my Heavenly Father for his concern for Charlie and his strong family and their example to me. I love you all so much.
Grandma Kathi

Anonymous said...

Hey, Jill again.. This past week, I have thought about many things and they were all inspired by our great prophet and this little boy. One thing that Robin and I realized is that we have all learned much from the things that happen to us and we all know that there is a greater purpose for all of us. My mother was pregnant with me when she had one of her ovaries removed..."she won't live they said..." Well, here I am.... Jace and Joey were both not supposed to make it and they are both here and strong and healthy and bright. Our little Marley, nearly one year ago, was born when she was 24 weeks premature and she is doing beautifully. I know that God listens to prayers... Many of us our living proof. But in the last week, my prayers have been answered in a way I never expected and that was through a renewal of my faith thanks to little Charie Cooper and Pres. Hinckley (not a bad group to be in). Thanks, Angel and Rob and the rest of the family for helping me see what was the most important thing in life: love, faith and family...

Congratulations Charlie Cooper and keep fighting little one, you will always been an inspiration to everyone on this blog.

Love again... JIll

Marilee, come home ... we miss you!

Trish said...

My understanding is that 13 is only unlucky if you are French and a Knight. As far as I know, none of us are French knights nor could we pretend to be. Therefore, enjoy your new bed and new roomies, little one!

Anonymous said...

Everyone at Grandma Cheryl's school is praying for little Charlie! We support you in all you are going through and we want you to know we love Grandma Cheryl! Keep the faith!

Through the Looking Glass said...

Angel and Rob, I found your blog through Whitney, and I have read your touching story and am amazed by your strength and spirit. Charlie is beautiful and strong; what a gift. You are in my thoughts, my prayers, and my love goes out to you both.

Amanda Calton (Mariotti)

Megan said...

We were able to fast for Charlie today (: We are still thinking of the little guy and glad to hear he is a doing a little better.
Keep up the good work Charlie!!

Teya said...

Hey little family fasted for you today. You are constantly in our thoughts and prayers. Hang in there! Just keep making those improvements, however miniscule they are!

StakerSensations said...

I know you don't know me but I went to highschool with danielle clark and i linked here through her blog. I am keeping you guys in my prayers, my heart goes out for you and i don't even know you. I can't imagine the emotions you are going through. My husband is a nurse in the PICU at primaries and I know all the staff up their is amazing! Keep fighting, I know they take good care of their patients! Shannon