Sunday, April 18, 2010
Monday, March 15, 2010
Liars... we/I am/are filthy/dirty rotten LIARS. How presumptuous of us to suppose that we would really maintain this blog appropriately and concurrently promise that as much would occur. Let me first speak as plainly as I know how. Resolutions, esp. those made by others invoking your involvement SUCK/BLOW. My wife's intentions were pure in suggesting that we would effort to more frequently update. My cooperation however was verily ungenuine. I'm hoping that my apparent/obvious lack of enthusiasm regarding the blog isn't being construed as a lack of appreciation for the august effort, therapeutically, that so many of you are involved in. We are in a continued/constant state of thanks and indebtedness.
Charlie's therapy is like a swiss clock. All of his Angel's have become rather proficient at their art. Progress is slow but we still see new things here and there. The most significant of late is his awareness. In undertaking this program we fully expected his progress to be purely physical and while we have reached some mile stones in that regard it is his mental faculties that have improved the most as of late. Charlie has started to recognize and respond appropriately to different individuals and he does have his favorites. He has started to anticipate certain things, mainly food and his overall awareness is getting better every day. It's as though he's starting to figure out where he is in the world. He doesn't really care for patterning and he's not afraid to let you know about it. The rest of therapy he doesn't mind. His favorite is songs and hot packs.
I think it apropos to use the blog to thank Suz for her labors. Tirelessly she arranges and rearranges varying schedules ensuring that Char's therapy runs smoothy. Surely many of you have come to know her and as we offer our gracious thanks to all of you we also say thanks to her. Suz I'm sure Char will put in a good word w/ the Almighty and the hours you have sacrificed on behalf of our dane bramaged boy will count themselves advantageous in The Book of Life.
A fine video was constructed of all of you Angels and as soon as I educate myself on how to upload or find a capable party to pawn it off on it will be posted. You should look forward to that.
Saturday, January 30, 2010
This is Megan and I'm updating because Rob is too lazy.
Thursday, January 21, 2010
Wednesday, January 13, 2010
First let me offer our continued thanks to all of the “Charlie’s Angels” who w/o you none of Charlie’s progress would be possible. When Char’s sweet little body was neurologically devastated Angel and I were unsure how we would handle our straightened circumstances, but now after seeing the Herculean effort undertaken by over 120 of you “Angels” a way has shown itself. Every week 114 man-hours are devoted to helping Charlie’s circumstances become less narrowed. Our thanks will never be enough to show you how grateful we are for your labors but sadly it is all we have to offer.
We have been working w/ Charlie for just over two months and to appraise his progress one needs to understand his developmental progress/state before we started. His evaluated neurological age was 2 months old. His physical competence was non-existent w/o any movement that could be interpreted as meaningful. Vital responses to pain, sound or light were a no-go. Char basically lay around, cried and writhed in discomfort, which was invariably related to his extreme boredom. Those who have been gracious enough to assist Charlie in his convalescing have been able to experience first hand his marked improvements. He is now responding appropriately to tactile stimulus, his vision has become his most keen sense, he is using his arms a and legs in a meaningful manner and can motor down his slide pretty quick (should he be in the mood) and when he lays on the floor he’s gotten pretty good at holding his head up for short bits of time. His hearing is still a concern but a couple of weeks ago he started responding somewhat consistently to really high pitch noises. However all this aside Angel and I are most impressed w/ one thing. His awareness. All you have to do is spend a brief period of time with him and you can tell that the light is on. Smiles, grins and long sustained glances have become commonplace. But the funniest thing is that when he gets sad he’ll cry a bit here and there, then when he sees that your there he lets go with the most cute/pathetic cry that actually sounds like a normal kid crying w/ his little bottom lip all pouty. It’s awesome.
Our plan is to continue w/ the program until we meet our 6-month goal where upon completion we will evaluate whether or not the progress Char has achieved is worth the inconvenience we have selfishly imposed on you all. Our hope is that the benefits we see will merit continuance, and that as we continue you will press on w/ us in attempting to rescue any of our little boys native endowments that the Almighty sees fit to allow.
Below is the page from our families annual memory book that my eldest sib felt would be apropos for all of Charlie’s faithful following. (Click on it for easier reading.)