Wednesday, February 6, 2008
Rough Afternoon :-(
We're not really having a ton of fun in the PICU today. Charlie was doing ok to start out the day and even let Angel and Grandma Cheryl hold for a while until he whipped himself into one of his fits. These are the fits that they are referring to as a "Thalamic Storm" are his little noodle unable to control the firing of neurons that originate in his thalamus. The firing is due to pain, fever, agitation, stimulation or being a stubborn Scandinavian and once the firing starts he isn't able to control it and it starts a chain reaction that we've only been able to control w/ meds. His last one lasted over an hour and a half and it isn't very fun to watch. Right now he's had tylenol, motrin, clonadine, methadone, 2 doses of ativan and morphine. So it goes w/o saying that he's pretty snowed. We hope it lasts for awhile. We are still very concerned that his neurological symptoms aren't improving so we are praying for his thalamus to chill out and give my little fighter a break. How long can my little buddies ticker hang out at 220 bpm?