Tuesday, January 29, 2008

Tuesday noon update

i met with rob & ang today for awhile and here is what i learned. He hasn't gotten worse, but not much better yet either.

Charlie had received all 3 doses of Prevnar (at 2,4,6mo), the vaccine, and the MDs are not sure why his body didn't recogize the organism to fight it. There is like a 1% chance he has some immunosuppressant issue.

They are going to stop the norephinephrine because his blood pressure is remaining steady. He was on it for 13 hours and anything less than 24 hours is preferred. They also stopped the vancomycin because they learned that his strain is responsive to the Rifamphin. He is getting an NJ feeding tube today. His liver enzymes were low, but they have come up. THey were concerned about his kidneys, but they are doing better and he is wetting diapers "like a race horse" Rob says.

He has not had anymore seizures since yesterday. They are still waiting for the Neurologist to come read the eeg, and we'll update on that when we can. He is on phenobarbital and a little fentanyl. Yesterday his right pupil was nonreactive and left was slightly reactive. He has some cross reaction on the left and none on the right, which is right in line with the right hemisphere swelling in his brain.

Angel said she is maybe not feeling optimistic, but realistic and hopeful. miracles do happen. but he more than likely has some damage. I guess the first 36 hours after diagnosis are the most critical, and we have passed that point, which is good. we will take any improvement however slight. We will keep updating any changes - however little and are so grateful that he hasn't declined. I know how many people are praying and fasting for this little man and it is incredible. please keep it up. rob & angel send their love and gratitude. They will be getting their laptop tonight and will try to post on the blog.

14 comments:

Ginny said...

Keep fighting Charlie!!!

Shani said...

Hang in there Charlie! I want to see your contagious smile and hear you giggle again silly boy!

seanteyatroy said...

Thanks for the update....Hang in there Charlie, Rob and Ang......there are lots of people praying and fasting....love you guys tons...Love Teya, Sean and Lil'Troy

Marilee said...

It's weird about this Charlie Cooper. I have never met him, I have never held him, but he touches my heart. I love his grandma cheryl and his dad so I love this little angel and his mom. Looks like the medical folk have declared war on Charlie Coopers invaders. I hope and pray they win the fight!
Love to all my family there supporting each other.

jdahlke said...

Our prayers are with you. If there is ANYTHING you need just call. Keep fighting. We love you.

Charlie Cooper said...

dad called and said he'd comment if he had more useable hands. They are thinking about you and concerned for charlie. he said grandma & grandpa amsler were praying for him too.

Nana Sue said...

What a handsome little guy, even hooked up to all that stuff! Our prayers and love are raised in his behalf. His name is on the prayer roll, I am thinking totally positive thoughts, HE WILL RECOVER!! Love and hugs to your darling family!!

Beachquack said...

I am sorry you have to go through this, but I am faithfull Charlie recover. Let me know if there is anything I can do. Get well Charlie!!! Rob and Angel, keep smiling!

Love,
Jamie

linds said...

rob and angel, please let britty come and play with isabella. i am home all day for the rest of the week. she would love it. we are praying and fasting for charlie. hang in there.

Trishie said...

Charlie, Ang and Robbie,
Words cannot express the sadness I felt to hear that this sweet little angel is suffering so. Know that God is with you all, there are so many people, known and unknown who are keeping you all close to their thoughts. I am praying for you all as well as my friends and fellow firefighters. We all pray that higer powers will be with all those caring for little Charlie Cooper. I'm so sorry to not be there and will be at a moments notice (or maybe a couple of hours flight) if there is anything that I can to do help in any way. I love you all so much and am hopeful that all will turn out for Charlie's best. ~Aunt Trishie

tjsterling said...

Hang in there Charlie, Rob and Ang.

We are praying for you and love you.

Thanks for the blog and the updates!

Anonymous said...

We want you to know that you're in our thoughts and prayers. We love you guys and pray that little Charlie pulls through. We wish we could do something to help you. We'll do what we can - we'll PRAY!
Love you,
Bob and Claire Chilton

Teri Stapley said...

Rob and Ang we are all praying and fasting for you guys. Know we love you. Chad, Teri and Family.

Aubrey said...

hang in there uys i know everything will be alright no matter what happens