Sunday, February 10, 2008
Sunday Morn :l
Well it's more of the same. Right now he is sleeping peacefully but he had a busy night. Rob is learning what it means to be your childs advocate. He has been staying the night in Charlie's room watching the monitors and encouraging the nurses to give medication after 2-3 hours of storming. The philosophy of medicating is a not as proactive as in the PICU:( Coop only slept about 2 hours last night and the rest of the time he was "storming". The storming now consists of fast labored breathing, heartrate between 160-197, arms constantly moving up and down like bicep curls, legs locked and pointed and left eye open but not looking at anything. The doctors are going to discuss a different approach today. He started to rub his tummy raw from the constant arm movements during the night so we have put a gown on him. Hopefully we can come up with something that will work for him.