Sunday, February 10, 2008

Sunday Morn :l

Well it's more of the same. Right now he is sleeping peacefully but he had a busy night. Rob is learning what it means to be your childs advocate. He has been staying the night in Charlie's room watching the monitors and encouraging the nurses to give medication after 2-3 hours of storming. The philosophy of medicating is a not as proactive as in the PICU:( Coop only slept about 2 hours last night and the rest of the time he was "storming". The storming now consists of fast labored breathing, heartrate between 160-197, arms constantly moving up and down like bicep curls, legs locked and pointed and left eye open but not looking at anything. The doctors are going to discuss a different approach today. He started to rub his tummy raw from the constant arm movements during the night so we have put a gown on him. Hopefully we can come up with something that will work for him.

2 comments:

Trish said...

I'm sorry it was a rough and busy night for you all. Coop, you now need to rest for the day, take it easy and give your old auntie a birthday present! It's my birthday so I get to do what a want and I want you to relax and rest peacefully today. Just ask Grandma Cheryl, that's how birthdays work. :-) Love you little man!

Anonymous said...

I am sorry the little man's night was so rough. And you ae absolutely right you are his advocates. You know him, the doctors only know the disease. You were called by Heavenly Father to be his parents. What a blessed little boy he is to have you. Remember you only need to have the courage to know that Heavenly Father is in control. Be brave and strong.
We all love you.
PS keep the nurses jumping Rob.