Wednesday, February 13, 2008
Some Good, Some Bad :-)-:
A busy day for our little man and he is still fighting his very best. I guess we'll go with the bad stuff first today. Charlie had his hearing test and what we thought might be ended up being true. Charlie is deaf. His brain didn't show any response to the stimulus, noise or vibrations. They tested him with sound up to 100 decibels and we got nothing. But that’s O.K.! Whenever we hit a road block like this I am constantly reminded of my plea to the Almighty that I made 2 weeks ago when Charlie's survival was grim, and that is that if the Lord saw fit, please let us keep him one more day. I've made that same request every night since then. I didn't ask for him to be perfectly healed, I just asked that he would be HERE, and by damn my little stud muffin of a boy is still HERE! So yes the bad news sucks but Charlie is still with us and of that I'm very grateful. Good news. The little hair thingy's (that’s the Latin medical term) in his ear that pick up sound waves are still functioning in his left ear so there is a possibility that sometime in the future he might be able to get cochlear implants that could restore some hearing. Second, he had a repeat CT scan and his noodle is in much better shape now that we're draining the fluid for him. Third, he had a ultrasound of his wrist to investigate some swelling that was concerning and they suspected a clot. No clot. Fourth, his storms aren't nearly as bad today as they have been and he seems to respond better to meds and calms down faster. Fifth, he's had some good cries today that have made his old man very very happy. All in all it's been a good day and we are eagerly awaiting even the smallest signs of improvement. The Neuro-trauma Attending Physician (Attending = Big wig in Dr. speak) was in today and was hopeful that Charlie's condition would start some gradual improvement. She also commented on what a wonderful support group Charlie, Angel and I have and that sad but true a lot of patients aren't so lucky to have so many people that care, visit and support them. Charlie, Angel and I are very lucky and we are so very thankful for all of you.