Thursday, March 13, 2008
FYI
I got to the hospital today in time to go for the swallow study at 12:20 but Charlie was too sleepy to cooperate due to his 12:00 meds so we didn't even get him in the machine. It has been postponed until tomorrow around noon and we will hold his medication until after the test. We also have not heard official CT results although our friend Darin in CT said he thought the ventricles looked the same :( but the rest of the brain looked better :)
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5 comments:
Bummer. might it be interesting to see what he does holding his meds? Or have they done that before? Will Rob be home in time for the test? Love you guys!
He has been 2 hours late for his meds before when he was waiting for CT and he slept right through it that time. But more often he wakes up and gets agitated 30 min before his meds are due. He does tend to be more sleepy during the day. We'll have to see because they are making a lot of changes lately with medication and feedings and being sick so every day has been different. Rob will be driving home tomorrow from Dylan Montana so I don't think he will make it in time but I think he will be hanging out at the hospital all weekend.
Any official word on the CT yet? I just thought I would check before heading to bed...
I am sure you are exhausted with moving and everything else. Try to take a little time to rest. I know there is a lot going on all of the time at the hospital. I will pray for good CT results and a great gag reaction. I'm glad the doctors are working on some new ideas to help make Charlie's life a little easier. Take some time to take care of yourself too :)
It seems like there are so many things happening! Good luck with all things tomorrow. Thanks for letting me spend time with him. Caroline really wants to come and see him next time, what do you think?
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