Dr. Such-Nibar made some adjustments to medication scheduling today so hopefully he will sleep more during the night and awake more during the day. Rob will find out tonight if it works. We had a second session of PT today with Janine and Charlie was very sleepy and fell asleep in every position he was in.
Tuesday, March 4, 2008
We had a visit from Dr. Park (ENT) for hearing and he said we should get the MRI of Charlie’s cochlea this Friday when we do the brain CT (for neurosurgery). He also said that if the MRI does not show ossification then there is not as big of a rush for the implants. He said that some hearing can return in the first 6-12 months. So it’s a hard decision to make. Do we give him time to recover as much hearing as possible over the next few months and chance ossification or do we start the process of implants? The implant process can take a couple months to go through all the steps. He recommended we contact the Department of Health and borrow some hearing aids to try so they can retest his hearing to see if simple amplification changes the results. Gather as much information as possible with the MRI, hearing tests, hearing aids etc and make an appointment with Dr Warren to discuss implants in the next month or two. If the MRI results show ossification we will need to make decisions sooner.