Charlie’s ankle braces were delivered today. So instead of PT he was fitted with his splints. (No PT pictures today- Sorry Meg) They are so cute and remind me of Forrest Gump. Because he wouldn’t keep his casts on his feet he was fitted with splints that can be adjusted or removed when he gets agitated. The straps are tightened to pull his foot into a tighter flexion.
Coop also had a chamber hearing test where he was inside a see-through sound chamber and the audiologist applied different levels of sound and looked for any behavior changes such as starting or stopping his cry, looking around etc. The tech that went with Charlie said that during the low-pitched sounds his eyebrows lifted like a startle. However it must not have been consistent because when Dr.Norby came to give the test results he said it showed “no response”. So we are going to proceed with the hearing aid trial (see picture above for hearing aid ear mold) and then cochlear implants, although we found out today that most insurances only pay for one ear and it is only approved for children one year and older. So we will be starting the appeal process now while we go through the hearing aid trials. Tomorrow is a big day for the little man. He has an 8:00 appointment for and MRI of his cochlea for audiology then off to get a CT of his brain for neurosurgery. Pray for smaller ventricles than last time and less atropy. I hope Charlie behaves tonight for his uncle Jared tonight.