We have had a lot of people ask if he ever opens his eyes because we never post pictures of it. One reason we don't put many open eye pictures is because he doesn't look the greatest.
Last night was pretty much the same. He had two storms, one of which required additional Ativan. He had a diaper blow of vesuvious proportions at 1:00 am like I've never seen before. It took 4 of us to clean him up again but I hope it made his tummy feel better. Today has been about the same as the night- a couple storms- long duration but not as severe. Dr. Such-Nibar came in this morning to see how he was doing and said some of our goals are 1-stabilize the storms (by adjusting medications or hopefully he will stabilize his brain so he doesn't storm as much) 2. Get results for hearing test, possible hearing aid trial, consult with ENT surgeon 3. Down the road-get the g-tube or j-tube inserted. Rob and I have spent an enjoyable Sunday together. Britt came to visit and we attended the hospital sacrament meeting with Troy and Andrea Chilton. Now Rob is watching NASCAR cussing at the TV because Tony just wrecked.
Good News: Jada is heading home!!!