From what Grandma Cheryl said it was another rough night. It seems as though a good calm day has its nocturnal consequences. So if you see Cheryl today and she seems a little sleepy you’ll know why. When I arrived this morning they were off to the gym for Occupational Therapy with Neale. It’s my favorite part of the day so I followed. Coop worked a little more on trying to lift his head and bearing some weight while in a standing position but was not as cooperative as yesterday. Since he is so little he has to choose to initiate the muscle movement otherwise the therapist is just doing range of motion/stretching for him. At this age they can't follow commands even if the brain were functioning normally. So today he wasn’t choosing to help as much as yesterday but it is still good to go through the movements to help him become aware of body. At the end of the session she put Coop in a sling swing that really calmed him down. He actually had his eyes open for quite a while and his breathing slowed down. (Progress I hope) I think he likes how the swing cradles him all around and has very smooth fluid movements. It is also helps children become aware of movement (vestibular) and comfortable with that sensation. He then fell asleep and we were able to bend his legs and arms. I think I’m going to need to learn to sew so I can have one at home- or better yet ask Grandma Kathi to do it.(hint, hint) And Jared will have to tell me where the support beams are in our house so we can hang it. I’m really excited that we have found something that calms him down besides medication!!! Yea
PS- He was so calm that the therapist and nurse are letting him stay in the swing while they have staff meeting in the gym. So far he has been in there for an hour and a half just slightly swinging.