Wednesday, March 26, 2008

Wednesday Morning

Coop was so relaxed last night around 1:00am that we were worried about his low blood pressure (66/24). The nurse and I took turns trying to wake him up. We put all of his splints on, wiped him with cold cloths, sat him up and held him, sternal rub etc. It would wake him a little but not for long so she called the resident. He said to keep an eye on it and we held the 4:00 dose of clonadine. When Terry Such- Neibar came in she said our goal was to stretch out the clonadine so since we are holding it so often due to low blood pressure she is going to change the dosing schedule today. He did really well last night with the pedialite and formula mixture so later today we will change it to all formula. Terry was glad to see him kick his legs a little this morning.

In preparation for the implant surgery on the 31st we will be checking for any signs of infection that would stop the surgery from happening. A chest x-ray is scheduled for today and lab work will be taken on Friday. We really want to keep him healthy until after the surgery otherwise it will have to be postponed and they currently only have one spot reserved for us. So they/we are asking that if you are sick or have been around sick kids lately please call or post a comment instead of visiting. Thank you everyone for understanding.

7 comments:

Meghan said...

ooh - i don't like it when he is that chill. but it is night time - he must have just been having some super good sleep. i hope they get the meds worked out soon so he doesn't act like that again.

i think the "stay away sickies" is a good idea for all the time, not just when he's prepping for surgery.. i think most people already do. and we all understand - don't worry about the blogosphere - just worry about your babe. love you guys!

Marilee said...

Very excited about the cholear implant. Technology is just amazing. Not too long ago there wouldn't even be this option for Charlie and his handicap would have been even more severe. I have a friend who has a computer adjusted hearing aid which I was just fascintated by. Now I see that it is possible to to get feedback on what he is hearing. I know this makes me REALLY ancient, but this is just a stunning achievment in medical science.
As I have a little sinus infection I will be sure to stay far away from PCMC. (he he)
I still troll this site several times a day and can't wait to see ya'll. Also, Meghan, I have played your rice game and I curse the day I linked to it. (though I felt very smart when I reached 41)

Meghan said...

oh, mar thanks for staying away - i know it'll be hard for you. (we are excited to see you too btw. i think trish is going to come the same time)
and i am impressed - i am a consistant 38...

Meghan said...
This comment has been removed by the author.
Riann said...

as a parent who has also stayed many a night at the bedside watching number, i had to laugh. It appears that Charlie is doing just want we want him to do, rest peacefully. My sons cardiologist finally would turn off the monitor and remind us that, "you will not have one at home." My son does many things strangely, (such as high temps 103+ and vomiting with teething) so we have had to learn who he is and what he looks like when he is actually sick. I have learned to "look at the kid, not the number." honestly, i am so thankful that this kid is starting to get some sleep and not storming. Also, once you get the cochlear implants to work, and he hears everything, you may never get him to sleep again. I found that my son fights taking a nap because he is so afraid that he will miss something good, i think it stems from the month in the PICU. Good luck

Tammy G. said...

On the blood pressure note, do they take the blood pressure on the arm or the leg. Our kidney doctors insist they take the blood pressure on the arm, it gives a more accurate reading. One of the issues associated with kidney failure is high/low blood pressure so we always have to use the arm for a more accurate reading. Just a thought.

Also, as you will find out you will know when something just "isn't right". Sometimes the numbers show that things are o.k. but you as a mom will know when it isn't. Don't get caught up on the numbers sometimes.

Anonymous said...

One of the things I learned from my pediatrician (Randy Reese) was that the mom knows best. He always asked me first what I thought and would proceed from there. I think moms (regardless of the age of the child) know instinctivley what is going on with their child ... never try to second guess that instinct... it is truly God given.

I am glad you are coming Mar, when is that? Sorry about Duke...

My son-in-law healed as fast as he got sick and is now home (Monday actually). He is doing great...... Rock on LDS Hosp.

Mom's most recent stuff puts her at near diabectic level.. so now we have eliminated sugar along with grains.. lot of fun, huh?

Charlie, take care... we all love you and pray for you and your family....

Good luck, Guys.. you are magnificent and incredible people and you deserve the very best.

Love, Jill B

fun game website is travelpod.com