You know the joke that the state requires you to pass a test in order to drive but there is no training required in order to have children. Well I don't think PCMC agrees with that philosophy because in order for us to take Charlie home, Rob and I are required to have a certain amount of education on Coops care. I have been watching videos, reading handouts, discussing things with nurses and taking TESTS! I thought I was done with school. I wonder what would happen if I failed the tests would they keep Charlie? Well, I’m happy to say I passed today’s test with flying colors and now it’s up to Rob to keep up our score for the Christensen Team. Afterwards we are supposed to pass it off with the g-tube lady in person. They take this stuff pretty seriously but I'm glad they do.
Today has been a really good day except for fighting with insurance companies. Coop is scheduled for surgery on Monday and UHC waits until today to say the expedited process takes 7 days. Dr. Warren’s office has been on the phone with them for hours throughout the last week getting them the required paperwork, medical necessity letters, MRI reports etc. with the surgery date noted on every page and there was never any mention that it takes 7 days. Sherry in Dr. Warren's office has asked for supervisors, a peer to peer review and even made lawsuit threats to push it through. I’m glad she is on our team. Dr Warren wants to keep him on the schedule and see what we can figure out between now and Monday. It may come down to calling it an “emergent” surgery where they get authorization after the surgery. But an $80,000 surgery is a big risk for them to take but there is no other time slot for us to move to.
Charlie has been awake for the majority of the day and sort of fussy but there have been many times that his has been just calm with his eyes open. He “worked out’ at the gym and practiced bending positions like sitting cross-legged while being supported by Janine. He also practiced initiating head movement while being rolled onto one side or the other. He did really well and then came back for a long snuggle with me in the rocker. He slept for a couple hours and is now back to his awake slightly fussy state. His feeds have been turned up by 2 and are now at 34cc/hour. Randa, one of our favorite nurses, is back for her 4 day stretch and said she sees improvement in his wakefulness over the past week. I think when Rob comes in later today he will notice it too.