It has been a pretty relaxing afternoon. Coop has slept a great deal and has even calmed himself once without medication. He had a big increase in Neurontin (from 15mg to 50mg tid) and an increase in Tranxene, so that could be a big factor in his calmness. Dr. Brockmeyer came and talked to me about the ventricles this morning because I was so concerned. I don't think it was an expected finding but I guess it is far better than the alternative. From what I understand, the reason he is not concerned is because when the shunt was put in the pressure in Charlie's brain was not significantly increased. Also the CT scan showed there is room between the brain and skull so the enlarged ventricles are not pushing the brain out against the skull. The bad part is that the enlargement is probably due to atrophy (tissue loss/brain damage) instead. :(
Above is brain CT pictures- The left is from the night we came in (Jan 27th-normal) and the right is from the day after the drain was put in (Feb 13th-abnormal). I don't have the most recent scan but the report reveal they were even bigger than Feb 13th. The ventricles (the reservoir where the spinal fluid is stored) are the dark bean shaped images in the middle of the brain. It's easy to see the difference in size.I went to watch physical therapy today with Janine to watch the workout. I love watching him try different positions. He was so relaxed that he fell asleep in each position. We stretched his neck legs and armsJanine stretched Coops neck out while having some tummy time. He opened his eyes for quite a while. His pupils don't really focus but I loved thinking he was looking at me.
Today's workout was so different than before. He used to get mad every time any of his body was moved. Today he was OK with movement as long as it was very, very slow.