Wednesday, February 27, 2008

Like Father Like Son :)

On our way back from surgery

In the recovery room wrapped in warm blankets.Mom saying goodbye and leaving him in the capable hands of the surgeon.

Covered in Betadine (red colored anti-bacterial fluid) after surgery. We aren't supposed to wash it off for 24 hours. Meg thinks he looks like an oompa-loompa. Didn't Vivian/Doris always want a grandchild with red hair?

Charlie got settled in his room then audiology came to complete the hearing work up so we had to leave the room so they could get a good reading. They had to wait for him to be calm enough do the test but when the tech placed the probe in his ear he would wake up. Needless to say it took a little longer than expected. When I came back, Charlie was having another storm. He was breathing heavy, his sheets were soaked from sweating and his heart rate was 202. I haven’t seen his heart rate that high in 2 weeks. He didn’t have any crying or arm movements with this storm. The nurse gave Ativan and within 35 minutes he started to calm down and has been sleeping ever since.
The Neurosurgery Nurse Practitioner, Syd, stopped by to check on him along with Charlie's girlfriend, Dr. Shannon (welcome back from Colorado!) and his favorite Dr. Osguthorpe. He is once again off Infectious Disease service but Dr. O said he would stop by socially to see how Coop is. We also can follow up with Dr. O when we go home but his office is in Provo so Rob may have to take him to those appointments. No word yet on the hearing test. I believe these results come from the audiologist. Vancomyacin was stopped today after the surgery. Dr. Such-Niber is looking to start Neurontin 15mg three times a day to calm him. Physical therapy has been postponed until they get the green light from Dr. Brockmeyer (neurosurgery).
His NJ tube has just become clogged. The nurse has tried different sized flushing syringes and is now going to try a little Coke in the tube to break up the clog. They asked my permission and I said Charlie's dad thinks Coke could cure cancer so it may be just what Coop needs. If you know Rob he is rarely seen without a Coke in his hand and I know he has secretly given Coop Coke before although he won't admit it to me. What do you know it worked!!! Hurray! It was a last resort that prevented us from having another NJ feeding tube placed along with the placement X-ray. The nurse said there was even a possibility of havng to go the whole night with no feeding tube which would mean no meds through the tube either.

17 comments:

Anonymous said...

By DAMN that's my boy!!!
--ROB--

Anonymous said...

It is official, He would make the cutest umpa lumpa ever. I wanted to come visit you guys this weekend but my roommates are sick and I don't want to get anyone sick! Congrats about the Coke, that is awesome. I'm sure he enjoyed it. If you guys need help cleaning the house, I just got done sanitizing my apartment so I wouldn't catch what everyone else has. I'm pretty much amazing with clorox at the moment. I miss you Angel!! Keep up the amazingness!
-Sara L

StakerSensations said...

hurray-
once again you all are amazing!

Roxey said...

you make me cry! (Rob's comment makes me laugh and cry!) Oh, and of course he's had Coke.....I saw it with my own two eyes when Char wasn't even aware! Love and prayers. get some rest.

The Bish & Eileen said...

We are so glad to have this much awaited surgery behind you. You are all our heros and you are all constantly in our prayers.

Anonymous said...

What a day!! Don't the best things come in RED. From red hair to coke and not forgetting schools. Now to be truly like Doris, we are expecting some dancing on the tables tonight.

I am glad that the surgery is over. I have had you on my mind and in my heart all day. Love all of you a ton.

Stefanie

Dallas said...

Glad to hear today went well. I check your blog like every five minutes now.

Fun times at the McF home said...

So glad the surgery is over. You all continue to amaze me with your strength and sense of humor in a tense situation. My little boy has become almost as obsessed with this website as I have...my heart goes out to you and so do my constant thoughts and prayers. Hang in there!

Jen McFarland (Grimm)

whitney said...

What a full day! I didn't know about the Coke thing, I thought you meant Rob looked like an Oomp Loompa too.

erin said...

That would be one seriously BIG Oompa Loompa! I wonder how many people across the country have the Oompa Loompa song stuck in their head and are subconsciously craving chocolate... Glad to hear all the good news. Coke is it! Sleep well sweet Charlie!

Suz said...

I always knew COKE was the only true beverage. Britt told me tonight that chocolate milk is his favorite drink. I will work on that. Hang in there!

XOXO

Pam said...

Always thinking of you guys. Glad the surgery went well.

Keep hanging in there. Do you recommend any neurosurgeon over another?

We are having surgery on Rhett's spine soon due to a tethered cord, and neurosurgery will be doing it.

If you get a second stop by my blog and tell me who is the best. This is one area where we are clueless at up there! Or you can email me at mom2rhett@hotmail.com
Thanks!

Keeping you in our prayers....

Pam and Rhett

Anonymous said...

Hey Angel and Rob,
We met Jared at the swimming pool monday and he brought ryan and britt. It was fun to watch those two boys keep Jared hopping around. Jared had so much fun with them he was laughing and then he had britt come and lay so power ranger kick butt move on me. Rob your kid is not afraid of anything. Jared was having as much fun as they were and we were haveing as much fun watching Jared take care of those two. Jared is a awsome uncle and brother. We are all so lucky to have such a great friend and example of compassion in our lifes. We pray for you always god bless
Greg and family

Trish said...

So glad all went well with the surgery and hopefully his results from the audiologist will be as positive. Ang, you're amazing, an inspiration, and an astounding example of strength and grace. Rob, I can't imagine how tough it must be to be away through the scary times. Glad Britt is having fun and doing so well, I'm sure he will be as happy as the rest of you to be settled in your new home. Keep up the good work Charlie, rest and heal up well! Love to you all...

Kelli and Jeremy Whitney said...

Coke rocks! Gammy used to give it to me when I was sick! It is the curing drink!

Megan said...

I am glad the surgery went well and that they got the NJ tube unclogged, that would not have been fun to replace!

I was wondering who is Charlie's neurosurgeon? Brockmeyer? Have you guys ever had Kestle?

Well, you guys are doing a good job at "hanging in there." I know a lot of people around here in Idaho have learned of you sweet, little guy and are praying for him. We are all praying for you guys.

Anonymous said...

I AM ALSO GLAD THAT THE COKE WORKED AND THAT ALL WENT WELL. LET ME KNOW IF YOU NEED ANYTHING. WE LOVE YOU AND OUR PARYERS ARE W/ YOU.

KIPPI & RICHARD & FAMILY