Thursday, May 1, 2008

We're home :)

Turning on the cochlear implant. It took 2 hours for programming and teaching. Dr Such-Neibar stopped by because she was expecting him to be more irritable but we didn't see any change.
Testing the car seat to make sure it supports his head. When we came in to the hospital he was in an infant carrier but since he has grown we needed to upgrade


Coop was so sad to say goodbye to the "baby whisperer" Janine
Goodbye Shannon- We will miss you
Rob had been looking forward to taking Coop in the wagon ride ever since we got here but we never made it so I had to use it to take him to the car just for a picture. Daddy- Coop has missed you this week.
Britt woke up from his nap and was really excited to see his little bro was home. He immediately went and got a stuffed animal for Charlie and placed it in his bed and then tried to tickle his toes when he was fussing. He's going to be such a great big brother.Sweet dreams.
Coop has done fantastic since yesterday morning. He has had several hours where he has been awake and calm. He slept the whole way home and was great pretty much all day. The home health nurse came by to set up the feeding tube and assess him. She said everything looks fine so we probably won't need to see her again. He is also set up to go to speech therapy, physical therapy and occupational therapy once a week. We go back to see Dr. Such Neibar in one month and will get the g-tube changed to a smaller button at that time. Last night it took me 30 minutes to figure out the 8:00 medication but luckily I have already gotten better. Charlie did really well throughout the night and today with only a couple periods of fussiness. I am loving having him home again!!!

71 comments:

Kim :) said...

I don't blame you one bit, home is my favorite place to be, too, and I'm sure he's happy too. Congratulations, we will keep praying, but he looks fantastic. God Bless, all the best for all of you!

Johna S. said...

Charlie looks so comfortable and peaceful to be at home! I am so happy for you guys! Everything will get so much easier the more you do it (especially with the meds!) Good Luck- We'll keep praying for you all!

Anonymous said...

It's so nice to see you home with your sweet family. Thank you again for sharing your story with us. We continue to pray for you and your Family.

Sending lots of love to you and your amazing Family. Your so lucky to have such loving parents!

Thank you,
God Bless

Anonymous said...

Ditto to the above post. Took the words right out of my mouth!:)

Anonymous said...

What a sweet heart! Glad you all had a great first night, and here's to many more!

He looks so grown up with clothes on! ( :

Anonymous said...

There is NO place like home!

Anonymous said...

Wahoo! Charlie is home and I bet there are no words to describe how wonderful that feels! Good luck in the transition. You are an amazing family!

Kelli and Jeremy Whitney said...

Welcome Home Coop!!! We are so excited to have you back at home! Good luck to you guys and congrats.

Allison said...

Yay! I am so glad that you have your Charlie home. There really is no place like it. You're always in our prayers!

Anonymous said...

He looks so content!!! you will be a rockstar at this I know it. many prayers and love from massachusetts.

Anonymous said...

When is Charlie's Birthday? Seems like if you dont keep on top of the reading you miss out on alot!

Anonymous said...

Wow, Charlie looks so good, especially with clothes on, not that he didn't w/o, but looks like quite the handsom little man now. All our wishes for a peaceful first week at home and a great transition back into life. Good luck, you'll do great! And thanks again for sharing this blog with the world. He has made us all better people through his trials, though I am sorry he, and his parent's have had to go through them. Daily thoughts and prayers are with you!
A Friend!

Anonymous said...

Way to go Charlie! Keep up the good work. Angel & Rob You are both such great inspirations to many thousands of people. Thank you so very much for sharing your beautiful baby biy with us all. We will continue to keep you all in our prayers.Brit keep up the good work of being BIG Brother. You have a special Little Brother there. God Bless you all. We will keep you in our prayers.

Kristin said...

Wow! He has grown up so much. He really does look more like a little boy now than a baby. It's amazing how fast it happens. That last picture is beautiful!

Anonymous said...

He is just one cute little guy! I love how sweet his brother is to him. Your boys are beautiful and you are blessed to have each other.

I'm so glad he is home...there is definately no better place out there than home. Charlie looks so adorable and I'm sure he can tell that he is home.

Best wishes to you and your husband in getting back to normality....your family will always be in our thoughts and prayers. God Bless, love the Paddock family, from CA!

Anonymous said...

Such a sweet little boy. Congratulations to be home with him. I'm so happy he has a fantastic older brother to help take care of him. Way to go. Best wishes for continued improvement and healing. Good luck being home with your sweet baby. I pray it all goes well. Thanks for the updates. As you've heard many times before, Charlie has helped many of us see what really matters in life and how precious our little ones really are. He has such a strong spirit, is a fighter, and is so precious and sweet. Thank you for sharing his story.

Meg'n'Josh said...

My heart is so full right now for you...I am SO happy for your family and that Charlie is HOME. He looks so good! Good luck with everything...and again thank you for letting us be a part of Charlie's life...it has blessed us in so many ways. We continue to hope and pray for you.
Love, Megan

Anonymous said...

Oh hooray!! You have such a beautiful family. I am so glad you can all be home together! Thank you for sharing your little boy with the world. We will continue to pray for continued improvement. I was wondering if and when Charlie will start receiving services from Early Intervention. It is such a terrific program. Taylor graduates the program this month and I'm not sure what to do without our "miracle workers" I am hoping Charlie gets to work with some of the same amazing people who have helped Tay. And I hope you love them like we do!

Best of luck to all of you! You are in our thoughts and prayers!
the Messicks

Megan said...

It is so good to see you home with your hero!
I am glad he is doing as well as he is at home.
We're still praying for you Charlie!!

Jeremy said...

Yay!!!! I'm glad you are home. I have been deeply touched by Charlie's story, and will continue to follow his progress. As always, thoughts and prayers.

Anonymous said...

I am so glad that you are all at home now. I bet he gets better faster now that he is in his own home with his big brother there to help him every day. The meds will get so much easier and you will have it down pat in no time flat!!!!

You truly are an amazing mom. I know that we moms do whatever we have to do for our babies, but you do it so well and with such grace. You are an inspiration to a lot of moms!!!!!

Charlie is very handsome and very loved, by those who know him and those like me, who don't.

Thank you so much for taking time out of your busy day to post on the blog. I am honored that you are still allowing us a glimpse of your family.


Thank you, thank you, thank you.

Kelly said...

Yay! Charlie is at home! I'm so excited for y'all. Before you know it, you'll have the meds and feeds figured out and you'll be "old hat" at it. I don't think you need to worry. Besides, he's got a great big brother to help let you know when something's not right! Congrats on the transition. Y'all will do great!

Anonymous said...

He looks content. I am so glad he is home and all seemed to run smoothly yesterday and last night. I hope tonight is good night too. Lots of prayers in your behalf...

Katie Williams said...

i'm so happy for you! Congrats on making it home!!!

Jody Knapp said...

Yeah and THANK YOU for the update! I am so glad things are going smoothly. It is so great to see him in clothes in his own house. You guys are just amazing!!

Nichole said...

He is a precious little guy. Good luck with this big transition. How blessed you guys are to have such a sweet spirit in your home to remind you of what life is all about. Thank you for the posts...I will continue to read. Good luck!

Anonymous said...

Congratulations!!

Anonymous said...

I saw your link on the KSL website. I've been following Cooper's progress for a couple weeks now. I'm a speech therapist and work with little guys like Cooper. To me, he seems very special. Your entire family seems special. I love my profession and I love being home with me own littles. It's a balancing act, but when I meet kids like Cooper I have to remember that I owe it the Coopers out there to share my knowledge. Thanks for helping me remember that! I am also expecting a 3rd baby and almost have my husband convinced that his name should Cooper! Best of luck to you. My prayers are with you.

Uncle Juan said...

Welcome home Charles! After three months I finally figured out how to post a comment. I am glad you are home safe and sound. I know that our Heavenly Father will still continue to bless you and your family, get better, I love you.

Lexi Hansen said...

Thank you so much for posting. I look forward to seeing his progress daily. We'll keep praying for Charlie.

Ginny said...

Quote from Anonymous above:

You truly are an amazing mom. I know that we moms do whatever we have to do for our babies, but you do it so well and with such grace. You are an inspiration to a lot of moms!!!!!

I couldn't agree more and felt that it was worth repeating!!! So glad you get to be home as a family!!

Meghan said...

wow, i am impressed juan. and i know you did it all by yourself as i know the ol ball and chain is at the office. sharp work.

Anonymous said...

Charlie looks amazing. Thanks so much for taking the time to update. You sure have a couple of very special and handsome little boys and you are such a great mom to them. Many prayers for your family.

Anonymous said...

I AM ALSO GLAD THAT HE HIS HOME!!!

LOVE, KIPPI AND FAMILY

Anonymous said...

what a blessing and a miracle to be home! Charlie has captured so many hearts, and he has the biggest fan club that a 1-year old could ever have. What a miracle... we are hoping and praying for many more miracles to touch Charlie's life. Good luck on your new journey at home.

StakerSensations said...

that post brought tears to my eyes...he looks so peaceful...thanks for blessing us by updating your blog! We know how much time your charlie takes and any extra time you have with britton and so an update is huge on your part and we very much appreciate it. Thanks again and good luck!!!

Anonymous said...

Congrats! Now my mom can finally bring the present she has wanted to bring for 3 months......YeeeeeAAA.
He really does look so much more peaceful... I am happy for you and the fact that you have made it this far... Love you, jILL

Anonymous said...

Yay for Charlie! Yay for the whole family! He looks great and very snug sleeping at home. I am so happy for you all.
-with love from NC

Roxey said...

i couldn't be happier!!! i love you guys so much! Rox

Anonymous said...

how is coops eyesight?

Fans of Charlie said...

Congratulations!! We are so happy for your family and especially for Charlie. We have been praying for you since we found a link to his blog on a BYU football website in February. We have shed tears of sorrow and joy as you've shared your experiences.

May God continue to bless your beautiful family.

Love and prayers from VA

Paige & Josh said...

I am so excited for you to be home and to be able to learn all about how to care for Charlie. I am sure that it will be such a neat experience and that you wouldn't trade it for the world. The picture of Britton made my cry. He is so attentive to his little brother and knows that he needs his stuffed animal and foot tickles. What a sweetheart. I love you guys!
Paige

linds said...

so glad charlie is home! we love you and continue to pray for your family.

Allie said...

What a wonderful day! :) We are so happy for you and Charlie! We love you! The Shorts.

Trish said...

So great... keep it up! I do love seeing Coop in his new room. :-)

Through the Looking Glass said...

Nothing is better than having all your chicks in the nest - everything just feels that much better. I'm so happy for your family, and everyone's right - he looks tremendously handsome and big in his clothes and in his big-boy bed!

Ali said...

I am so glad you were able to take your sweet boy home! He really looks amazing! You are all an inspiration to me!!

Ali

Hillary said...

What a miracle! I can't believe Charlie is finally home! I am so happy for you guys! You are an amazing family and a great example of strength to me! You will continue to be in my prayers! I am so happy that your sweet little man is home with you tonight!

Anonymous said...

Good job Britt on being such a loving big brother! Your sweet little brother and your mommy and daddy and so lucky to have you!

whitney said...

He looks so content. Sleep well everyone.

Anonymous said...

How awesome to have your little one home. Please know that we will continue to pray for him and will look forward to the next time you can update.

A family in Missouri.

Karen said...

Another mile stone was accompolished!! Coop is home and so very handsome with his wonderful big brother to tickle his toes.
You're family is awesome!
Everything mentioned above is in my heart so let me just add one thing. Isn't it great families can be together forever?
Love all you guys

Andrea said...

Charlie looks sooo great! I am thrilled he is home. I had a crazy dream about you guys last night. I'll have to tell you about it. I'm glad that you are able to stay home and take care of your boys. You're a great mom. Did I mention fun too?

Nana Sue said...

Wahoo! You're a family at home again! His photo sleeping is priceless, he is such an absolutely beautiful/handsome little guy! My thoughts and prayers are still going stront, hugs to you ALL!!
Love,
Nana Sue

The Woolstenhulme Family said...

I am so glad you guys finally made it home. CONGRATS! You are such an amazing woman. Love & Prayers The Woolstenhulmes

Julianna said...

Every time I look at your blog I have tears in my eyes. I'm so happy Charlie is home now...I'm sure you are too.

Anonymous said...

Thanks for the awesome post!!Shyla

Anonymous said...

Not that this is news to you but I just HAD to tell you how BEAUTIFUL your little guy is!

Anonymous said...

All this talk about Angel and the angel that she is (which is all true and then some), but I felt it appropriate to throw some props to Dad, too. Rob, we think you are pretty awesome too!!! Didn't want you to feel left out!

Anonymous said...

I found your blog about a week ago and I have spent every free moment catching up on all the posts. Congrats on getting him home! That is wonderful. Your family is truely amazing and I have found myself drying my eyes on many many occasions while reading your entries. He is a beautiful little boy. I don't envy the challenges you all have ahead of you, but I do envy the strength you have! It radiates through every word you write. You have an amazing family who I hope and pray will continue to support you. I pray for your little Coop every day! Best wishes!

angie said...

Congratulations! I've been watching his amazing progress through his blog and it is so wonderful to see he's home - right where he should be. You guys are truly inspirational.

pirate ride said...

WELCOME HOME Charlie!! Our thoughts and prayers will continue to be with you!

Brea Marie said...

Congrats Charlie, you did it!! Hurray for the entire family. Such a long and hard battle you have had to endure. We hope for all the best to a wonderfully sweet and amzaing little boy. Keep on paddlin, Jack Jack!

Ginny said...

Happy birthday, Charlie!!! I don't think many one-year-olds have earned a party quite like you have!! Hope you and your family have a good one!!!

Anonymous said...

Happy 1st Birthday Charlie. We hope you have a fantastic day at your new home. What a way to celebrate coming home and turning one. You are angelic.

Anonymous said...

Happy Birthday Charlie!

Anonymous said...

Happy 1st Birthday Sweet Baby Boy!!!!

Andrea said...

Happy birthday Charles Cooper Chirstensen! Yeah for turning one!!

Anonymous said...

YEAH!!! HAPPY BIRTHDAY CHARLIE!

Anonymous said...

Happy, Happy Birthday Charlie dear! :):):) Thinking of you today!

Anonymous said...

Happy birthday to the most inspirational and sweet boy ever! I'm so glad you are home with your family surrounding you with love. I pray that the coming year will be full of positive "Charlie Steps". You and your family are an inspiration to so many of us! We all love you and continue to pray for all of you! Handsome Britt is such a great big brother too! I love his cute smile!