Wednesday, April 30, 2008

Last Day :)

This morning has been a whirlwind. Charlie threw up again last night at midnight, the exact time he did the night before. It was after being off of feeds for hours so I haven’t really found a connection yet. We’ll see what tonight brings. This morning we went up to the audiology department for 2 hours to program the implant. He slept the whole time so the audiologist programmed it to average comfort zones. We are supposed to experiment with 3 different programs and different volumes over the next two weeks and meet with him to reprogram. The process usually takes 6 months to find the correct program with a healthy person so Jason thinks Charlie could take a year to find the right parameters and teach his brain to recognize it. We are looking to be leaving around 1:00 this afternoon. I will definitely keep posting about our transition however it will be less frequent so please be patient while we figure out our new normal. Thanks again for everyone’s support and love. We rely on it daily!!!

22 comments:

Ginny said...

Good luck finding your new normal!! We will all be fine as we adjust to our "new normal" without multiple Charlie fixes!! Just know you are being cheered on and prayed for by THOUSANDS of people! WOW!

Anonymous said...

I am so excited that Charlie gets to go home today! Just watching the slide show brought tears to my eyes....once again! I've always heard how wonderful the staff is at PCMC....and I just think the people there are wonderful and look as if they really do a wonderful job for those sweet children, especially Charlie.
I wish you all the best when you bring Charlie home....I look forward to checking your blog everyday for news on how he is doing. God Bless and your family is truly amazing....we love that little boy even though we've never met him....he is touched our lives more than you will ever know. Thank you for sharing him with us all! Love, the Paddocks

TheWilson3 said...

Way to go Charlie!!
And great job PCMC taking care of this sweet little angel.

Trish said...

Hooray!!! (doin' the dance)! I'm so happy for you all to be going home. What peace you'll have being in your own loving environment and away from beeping and constant interruptions. Enjoy the new transition for what it is. I love you all and would love to come help out for a few days (Rob, let me know about the voucher thing)!
Wishing you all the best!

Anonymous said...

Ahhh! I have butterflies in my tummy for you guys I am so excited! I am sure Charlie will love his new room and this will be just what he needs. Good luck, and get some rest!

Any news on the eye exam?

whitney said...

I have tears of joy and excitment pouring right now. You guys are going to do great with Coop at home. PCMC will miss you. Rob, do you have dates set up with Dave so you can still see each other?
Good luck today, Charlie is lucky to have you two as parents.

Anonymous said...

You guys are so amazing!! My prayers are always with you and that perfect little spirit of Charlie's. What a fighter he is...he has captivated our hearts forever. I hope your transition goes smoothly and you are able to peacefully adapt to your new life. Remember you are never alone. I hope the donations are coming to you in the hundreds $$ to care for the little man! He deserves every temporal blessing in the world and many many miracles!

seanteyatroy said...

Hey Ang...will you let me know when I can come visit you. I know it's hectic and more visitors just add to the chaos, but I am constantly thinking of you guys and would like to come visit. Good luck. Love you guys...

Neale said...

I will miss him greatly and will be looking foreward to your return visits!!! Have fun at home and becoming normal again!!Love Neale

Sally said...

I came upon your story by accident and have been checking on your updates ever since! You have all touched the hearts of so many people - even far away in South Africa. I wish you continued courage and strength as you take your precious boy home. Lots of love and best wishes to an amazing family.

Anonymous said...

Yeah..........Congratulations! That means Charlie will be home for his first birthday! Perfect! I will miss the daily updates but look forward to hearing about Charlie's progress now and then. Enjoy taking your little stud home to be with his family. There is nothing like being home........

Anonymous said...

Good luck to you all. Charlie is a fighter and so is his whole family. You've touched so many of us more deeply than you'll ever know and yet we don't know you personally. What a reminder of the power of prayer and family. Thank you. Looks like you've been well cared for at PCMC and we all pray your transition home is a happy and smooth one. Please remind your "fans" out here if there is any way to help you out or if it's best through donations. (we hope he's wearing BYU blue home!) Cheers to all. Thank you Charlie and family. Our prayers will always be with you for continued recovery and strength. You are a superstar!
Best wishes. We're cheering you on from Spanish Fork.

Anonymous said...

Yeah! Good job guys! Best thoughts and wishes from your friends at RMNA. Even though we don't post comments much, we all are constantly checking in on Charlie via the blog and think of you often. Angel, at work you've always proven that you can do anything anyone asks of you with excellence and I know that caring for Charlie will be no exception.

Whenever things settle down a little, give me a call regarding the voicemail I left if you're interested.

I'm trying to get my rear in shape for the 5 K on the 17th so look forward to possibly seeing you there :-)

With much love,

Kara M

Tammy said...

Good Luck....let us know as soon as you feel like your life isn't as crazy....wait that never happens. We will be looking forward and waiting patiently to hear from you. Good luck Charlie and enjoy being back in your own bed.

The Baum's said...

I remember feeling the same way after I had Kylie knowing I wouldn't have the nurse button available to me 24/7, but really, "there's no place like home!" We'd love to come by and see you guys soon - I'm sure Kylie would love to play with Brit...good luck with everything!

Maria Dohnal said...

Angel, Rob, etc I have not posted before because I've never known what to say, I still don't..... I wish you the best that the Lord will bestow upon your family. Our prayers will continue for you.
I was also wondering if you got a swing like they have in the PT dept there at PCMC (the one that Coop likes so much)? I have some connections that may be able to make one made and thought if you didn't have one for home I could check it out. So if you don't have one and would like me to see if I can get one let me know via email chuckmeagoods@yahoo.com

Love Maria and Taylor Dohnal

Anonymous said...

I am happy you all can move to the next step in your's and Charlie's lives. I wish you luck and look forward to hearing how is doing when you are up to blogging about it. Even if we don't get the usual daily updates he will always be in my thoughts in prayers. He is lucky to have a great fmaily like yours and you are lucky to be in charge of such a special little spirit. Good luck with you first night home! I hope things go smoothly, well as smooth enough!

The Woolstenhulme Family said...

GOOD JOB COOP! You are so amazing. I am so proud of your for fighting so hard to be able to go home so soon. You are such a strong little boy. You will all be amazing at home. Love & Prayers from the Woolstenhulmes

Marilee said...

Charlie:
Are we there yet?
Are we there yet?
Are we there yet?
Are we there yet?
etc. etc. etc.

Me:
Are YOU there yet?

Anonymous said...

I'm crying. Thanks for letting us be part of your lives for 3 months. Good luck. We won't stop thinking about you even if we stop reading about you!

Meghan said...

ang - i am so happy you guys are FINALLY home. after 10 years.. after 3 months... we will give you guys space for awhile and let you and coop get used to each other and your new routine. you are one of the best mama's i know and you are gonna do great. we love you a whole bunch and are around whenev. (unless we are south a provo this weekend ;)
enjoy your baby...

The Wood Family said...

I must say.. This is my first comment on your blog, but I enjoy reading it daily. Your son has touched many people in this world, and I really do pray for your family daily. Your family is very very strong, and I admire your courageous strength. I'm so happy to hear such good news. Please keep us posted. :)