Thursday, April 10, 2008

I shoulda, coulda, woulda posted at 7:00am when I was thinking of it but thought that I would wait for the doctor to come and give us more info. Well she came in and said that he seems to be tolerating his food now that it is going directly into the jejunum instead of his tummy. So the plan is to have him receive a GJ tube. That is when the food will go into the g-tube in his tummy and straight to the jejunum (small intestine). This will mean continuous feeding but also working to progressing towards the g-tube feedings. (I hope that my lay understanding is right for those of you that really do understand all of this)

Last night Charlie had a good nights sleep. However the rest of us had more trouble. Around 10:00ish he settled down for the night and slept on. About 1:00am the nurse said that he hadn't peed for too long and they needed to see what was happening. A machine was brought in to ultrasound the fluid in his bladder - not much. Then my little man was catheterized - none. So, next the IV team was brought in to give him an IV in his right foot (He kinda let them know that he did not like that),and fluids were given til this morning and he resumed peeing. That maybe too much information. Basically, Charlie slept through all of the until around 7:00 this morning.

Most of the morning I have been holding him and he is calm when I do the assigned "bum pat". When I lay him down (as he is now), he lets me know that he wants more holding and "bum pats". I will oblige. Grandma Kathi

9 comments:

whitney said...

Of course he wants more holding, I am glad he is letting you know. Do they know why he isn't having a lot of urine output?

Charlie Cooper said...

Whitt: Good question. Yesterday his feedings were stopped for a time and the feeding was not at full strength. So he did not receive enough fluid for about a day and a half. Sorry that I didn't explain that. Grandma Kathi

Anonymous said...

Sorry you had a bad night but it sounds like things are going really well and you guys are figuring stuff out! That is really great news. I am glad you guys all get more cuddle time with Charlie now too.

Tammy said...

You are correct in you understanding of the GJ tube. Since the small intestines do not expand like a stomach does they require the continuous feeds. We did the GJ tube for a year and it wasn't as bad as what I thought it would be. You can get 3 foot extentions for your feeding bags and they do a good jon of letting there be a lot of room to move around. I think Charlie will start to feel better and not have to do so much work digesting and will be able to put some attention in other areas and get better. He is a strong kid. Good luck and we are thinking of you guys.

Kiplyn said...

Any news on if you get to go home this week?? Kippi

erin said...

Thanks Kathi. You're the greatest! Love you sweet Charlie!!!

Paige & Josh said...

Don't try to fool us Mom, you love the "bum pat" I doubt there is another person alive who loves bums as much as you- especially the little baby ones! I am glad you get to hold him more- I bet you are enjoying it.
Paige
By the way- Angel and Meghan convinced me that I needed to start a blog too so you can go look if you want- it isn't that interesting yet but I am still working on it.
paigeflorie@blogspot.com

Roxey said...

love the assigned 'bum pat!' i hope everyone has a good night tonight. Love and prayers,
Rox

Paige & Josh said...

Opps. I put it down wrong.
http://paigeflorie.blogspot.com/