I shoulda, coulda, woulda posted at 7:00am when I was thinking of it but thought that I would wait for the doctor to come and give us more info. Well she came in and said that he seems to be tolerating his food now that it is going directly into the jejunum instead of his tummy. So the plan is to have him receive a GJ tube. That is when the food will go into the g-tube in his tummy and straight to the jejunum (small intestine). This will mean continuous feeding but also working to progressing towards the g-tube feedings. (I hope that my lay understanding is right for those of you that really do understand all of this)
Last night Charlie had a good nights sleep. However the rest of us had more trouble. Around 10:00ish he settled down for the night and slept on. About 1:00am the nurse said that he hadn't peed for too long and they needed to see what was happening. A machine was brought in to ultrasound the fluid in his bladder - not much. Then my little man was catheterized - none. So, next the IV team was brought in to give him an IV in his right foot (He kinda let them know that he did not like that),and fluids were given til this morning and he resumed peeing. That maybe too much information. Basically, Charlie slept through all of the until around 7:00 this morning.
Most of the morning I have been holding him and he is calm when I do the assigned "bum pat". When I lay him down (as he is now), he lets me know that he wants more holding and "bum pats". I will oblige. Grandma Kathi