How cool has this blog been? Admittedly when I initially heard about the whole blogging business I gave Angel a load of crap and in not so many words told her it was all “hokey pokey.” Oh how wrong I’ve been. When my thoughtful sisters, Meghan and Susan (what would I do without them?), started this up in the infancy of our stay I looked at it as a way to keep folks in the loop while in the PICU and then it would go away. Obviously it has not, it has evolved into its own beast and I have come to understand that maybe the “hokey pokey” is what it’s really all about. The blog has been a lifesaver for us. Not just in keeping folks updated on the day to day life of our preciously lovable little boy but in providing an avenue for us to reunite w/ old friends and make many many new ones. You all have been so great with you kind words and prayers but your innumerable acts of pure service, many of which I’m sure have gone unnoticed and unappreciated; have deeply affected us as a family. Angel and I feel so undeserving yet unequivocally blessed.
As we undergo Char getting his new ear and with the end of our stay hopefully in sight it is “a time of great excitement where my mind is called up to serious reflection and great uneasiness.” What do we do w/ the Beast that is this blog? Allow me to plead my point and then we will welcome any elucidation and/or remonstrance (That was for you Whit.) in the comment section where only the brightest and most insightful bloggers hang and bum steers and biases are not welcome.
We have sincerely enjoyed sharing our story w/ you all and reaped invaluable insight and support from your loyal interest. Some of you have been kind enough to share your stories here as well and we are so thankful for the support, hope and love that they have provided however the tears that followed we could have done without. In raising Britton, he and I have had the understanding of machismo that you only cry when you’re bleeding, a lot, but now we have discussed that the list of events that necessitate ocular mist has grown. It’s now ok to loose it anytime you get good or bad news from doc’s, randomly reading blogs, meeting The Coach, holding Charlie when he won’t calm down or wondering why this is all happening to such a perfect little boy. I don’t mean to sound trite but there is a certain perspective that comes from having a chronically ill child in your family. Hopefully through this story you’ve been able to glean a portion of that perspective. I think what I’m trying to say is that while here in the hospital we’ve had nothing but time to do things like visit, post and keep up on the ever growing list of blogs we love to often read. But once home our primary concern will be our boys and their welfare. So the real purpose in this post is to plant the seed that when the great day arrives that we get to take Charlie home and be a family again the priority of blog updates will inevitable slide down the list of import. I in no way mean to sound presumptuous like if the blog stops your world will be found lacking, but while attempting to prioritize a future home life w/ some of those closely associated w/ our family the idea of suspending the blog has gone off like a fart in church. So, since none of us like stink on the Sabbath, we’ll keep the blog up but be on notice that update frequency will decline, once a day, maybe once a week and rest assured it is Angel and I whose world will be found lacking because I am confident we enjoy all of your comments infinitely more that you might enjoy our posts. Angel and I are so lucky to have all of your support and prayers but where we are truly lucky is to have a sweet and special boy in our family. A boy that will bless us all to limitless ends every day he is with us. In reality we are so fortunate the Almighty saw fit to entrust us with this perfect spirit and I hope we don’t let him down.
Now feel free to talk amongst yourselves.