I've been reading Charlie's blog for a while now...some friends of mine had a link to it on their blog, and I was immediately drawn in. You guys have been a huge inspiration to me, especially as I've faced physical challenges with my little boy. Our son (our first baby) was born last April with a congenital defect in his right eye that left it sightless and malformed to such an extent that doctors thought it best to remove it last August. He has a prosthetic eye and is otherwise a healthy, happy boy, but the process of acceptance and understanding has been such a rollercoaster for me. And although I was only 2 at the time, my older brother passed away after contracting meningitis when he was 4. That has been a trial some members of my family have never been able to quite get over. You are so blessed that Charlie was able to fight through it, even though it brought a different set of trials into your life.
I know that physical and mental ailments come in all shapes, sizes, and levels of severity, but that doesn't lessen the impact these ailments have on family members who are trying to cope. And I think your family has done an unbelievable job of coping and being obvious supports for those around you. I'm sure you have been bouyed up through prayer and support from others, and my husband and I have also experienced the blessings that come when others pray and fast on your behalf. I just wanted to say how much I admire your strength and your determination to move on in life, because, really, what else can you do? You've been such an example to me and helped me come to terms with the fact that everyone has their own trials and Heavenly Father has a plan for each of us--our children are His children and He knows what will be best for them, even if it sometimes causes us some pain or heartache as parents. And we are His children and He knows what's best for us, even if we hope and pray the outcome might be different. Our little boys are so precious to Heavenly Father that He knew they could handle whatever this life threw at them, and so could we.
Your family is in my prayers constantly and although I'm sure there's a "creepy" factor to getting random emails like this, I hope you know your family is an incredible example to those of us who hear of Charlie's story through the grapevine!
emily (in Philadelphia, PA)