For all concerned, Charlie has done famously the last few days and has had an uber busy week. We’ve had some great visits, a bit of therapy and finished off the week with a trip back to Primary Children’s where Charlie was able to help out the folks from KSL with the annual Children’s Network Telethon. He’s a Superstar! The telethon experience could be a solo post however my motivation is lacking so perhaps another time. But needless to say it’s not a simple task to be on TV getting interviewed live while the little man sitting on your lap begins to move his bowels with reckless disregard for present company and concurrently producing rectal wind so plangent and pungent one would be hard pressed to find even the most veteran of sewer rats capable of suffering the barrage of faulty elimination and keep composure until the cameras turn off. Rough.
This coming week should be another busy one; on Tuesday Charlie heads back up to Primary’s for his first follow-up visit with the doc’s. He’ll see Dr. Terry, the rehab doc and Dr. Jackson the GI doc. Dr. Jackson has plans to convert Charlie’s G-tube into a button, or “Mickey button”, and then the current hassle of wrestling tube extensions will be alleviated. Also, my dear sweet and super hot wife is studying and reading all that there is about different kinds of therapy that Charlie desperately needs and will soon be formulating a strategy to help us help him the very most. Popular belief is that damaged brains show the greatest improvement in the first year post injury and Charlie is already at 4 months so if I know my wife, who is totally hot by the way, this house will be turned into a therapy boot camp before you know it.
Right now the day-to-day stuff for Charlie is getting more regular. He’s sleeping better at night and he gets uncooperative about the same time everyday. Charlie used to get Clonadine (Rx that calms him down really good) every four hours and now he gets it maybe once or twice a day. He also got quite a bit of Ativan while in the hospital to mellow his ill temperament and we’ve only had to administer it a handful of times since coming home. So there are some good things, some Charlie steps, and we’re hopeful they’ll continue. Thanks again to all of you for caring and praying for my little hero, all Angel and I ask is that you don’t stop.