I did another EEG last night after Britt went to bed and it looked much better. We went to see Fran Filloux today at 3:30 and told him I had not seen the left sided jerking in over a week and felt like the medication has helped. When he compared the EEGs he agreed and was very pleased it had worked so quickly. Protocol for this medication is to stay on the effective dose for 2 weeks after the seizures stop then start to slowly taper off the medicine. If the seizures come back we go up to the last dose that was effective and stay there for two weeks then start to ween off again. He said that there is a 50% chance of this happening. So since I estimated that I hadn't seen a seizure for over a week, he wants Coop to stay on the full dose for 5 more days before decreasing it. It will take almost a month before we are completely done with the shots. His bloodwork was normal and his blood pressure has stayed within the acceptable range for this type of medicine. Dr. Filloux said that Coop will slowly grow into his extra weight and chubby cheeks, he won't just loose it after stopping the medicine. But, if it worked that easily and chubbiness is the only side effect then I can't complain. I commented to the doctor that this was the first thing with Charlie that has been straight forward and he said "that's what I'm worried about." SO keep your fingers crossed that we are on the downhill.
And he also wants us to start decreasing his other seizure medicine (phenobarbital)!!!