Coop had a pretty good night last night. I expected to up all night long but I guess he was just exhausted. Since surgery was so long he did not recieve his 2:00, 4:00 or 6:00 meds so when he he fully woke up he was pretty mad. He got a little Ativan around 9:00 and calmed down for the night. He woke up a couple times througout the night but they were short spurts of fussiness and then went back to sleep. The surgeon's partner (I think Dr. Warren is out of town) came by at 6:00am to check Coop out and said everything looks good. He checked in his mouth because last night there was some old blood in Charlie's drool and in his g-tube. He thought that was related to the breathing tube during surgery and everything looks good now. Dr. Such-Neibar just came in and was pleased he did so well last night. She was prepared to get a late night call regarding him. The plan is to start from the begining with his feeds (1/2 formula and 1/2 pedialite) starting out very slowly and working up to full strength and then bolus feeds (feeding all at once like a meal). The medication needs to be grouped together in 6 hour stretches instead of 2-4. She would also like to see him not need the Ativan for a while before we go home. She does not want to rush the feeding titration because she said everytime we do Charlie doesn't tolerate it well and we have to start all over again. She thinks it will take about a week before we are ready to go home. Charlie is also tapering off methadone but that will take 9 weeks. It's exciting to be coming off medication instead of adding more.
Charlie with Randa- an incredible nurse
Coop had a pretty good night last night. I expected to up all night long but I guess he was just exhausted. Since surgery was so long he did not recieve his 2:00, 4:00 or 6:00 meds so when he he fully woke up he was pretty mad. He got a little Ativan around 9:00 and calmed down for the night. He woke up a couple times througout the night but they were short spurts of fussiness and then went back to sleep. The surgeon's partner (I think Dr. Warren is out of town) came by at 6:00am to check Coop out and said everything looks good. He checked in his mouth because last night there was some old blood in Charlie's drool and in his g-tube. He thought that was related to the breathing tube during surgery and everything looks good now. Dr. Such-Neibar just came in and was pleased he did so well last night. She was prepared to get a late night call regarding him. The plan is to start from the begining with his feeds (1/2 formula and 1/2 pedialite) starting out very slowly and working up to full strength and then bolus feeds (feeding all at once like a meal). The medication needs to be grouped together in 6 hour stretches instead of 2-4. She would also like to see him not need the Ativan for a while before we go home. She does not want to rush the feeding titration because she said everytime we do Charlie doesn't tolerate it well and we have to start all over again. She thinks it will take about a week before we are ready to go home. Charlie is also tapering off methadone but that will take 9 weeks. It's exciting to be coming off medication instead of adding more.
Charlie with Randa- an incredible nurse
13 comments:
Good news - good night - good results. AWESOME!!!
You are the best, Angel
Cheryl
AWESOME!!!! I LOVE AWESOME NEWS.
PEOPLE ARE THINKING ABOUT YOU IN IDAHO AND LOVE YOU GUYS. CHADSKI
Cheerint you all on in the Gift Box at LDSHospital...Jill B
Way to go Charlie. Way to go.
Yeah! I'm so happy to hear the good news. What a tough little guy.
I hope you got some rest last night, Ang. I just love that comment above, "Way to go Charlie. Way to go." It brought tears to my eyes. I second that.
Love and prayers for a calm day.
Rox
Me too! That "Way to go" one got me too! It's just what we are all feeling.
So glad he is doing so well. There is always worry w/ any type of surgery - its great to know he had such a good night post-op.
Going home in a Week-ish!? Yea! I think I'd be excited and nervous all at the same time. Its like being first time parents all over again. New instructions on how to do something you have never done before. I'm excited for you! You two are great parents - you are his parents for a reason, no doubt about it.
Special kid with special parents.
Love you,
Ann
That is such good news. Charlie sure is a trooper. Keep up the good work mom and dad.
The Gales
Yay Charlie! I'm glad to hear that the surgery went so well. Better later than never. I'm glad that the U could pull thru for Charlie as well. They always had bits and pieces laying around even when I worked there. :) Glad to hear all is well. Prayers are still working for this little family and will continue to do so!
Great!!! Great!!
great work charlie!!!
That is great news you guys! It is great to hear that there is an end is sight now too. I know it is scary to think about going home and how you are going to do this but just like everything else, we figure it out!! You guys will do great. Did you ever think you could handle a stay like this in the hospital? And look, you are almost done and you did it so well! You will get through this too.
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