Rob concentrating while changing Charlie's g-tube dressing
Britt playing dinosaurs with Dave and Kate- the NTU nurses
G-tube dressing
Rob giving medsI know you have been waiting all day for Rob to post but in the mean time I thought I would update you on Charlie's day. I know it won't be as entertaining but at least it something. He started out calm throughout the early afternoon. I held him from 12:00 to 2:00 then Rob learned how to change his G-tube dressing and he was upset for the rest of the night. Changing the dressing involves first peeling the tape off of his stomach and then cleaning the area before finally re-taping. From then on we tried everything to calm him down again. I tried holding him again, stroking his cheek, cold washcloths on the forehead for his sweating, Ativan, Motrin and leaving him alone. He was fussy off and on for 4 hours until it was time for clonadine again. His feeding is still on 1/2 formula and 1/2 pedialite and 40cc/hour and he has been doing fine. He will stop formula at midnight in preparation for surgery. Dr. Warren has clinic in the morning until 12:30 and then has been worked-in Charlie's surgery afterwards. Surgery will probably be around 2:00 and is a 2-3 hour surgery. Rob is currently learning how to give all of Coop's medication and he passed his test except he missed one.
13 comments:
Ang, I like your posts too. Still just in awe of you both. Coop and your family are in our prayers continually but especially concerning the surgery - what a big step for him. I hope he calms down. Maybe he was just so excited to have Rob in the room. Good luck tomorrow, we love you.
Hey guys,
just wanted to tell you good luck with surgery tomorrow and you continue to be in our thoughts and prayers. I also thought I'd tell you that our 7 year old prays for "baby Charlie" every night now. I feel the spirit so strongly when I hear Charlie's name in his prayers, even though we've never met the little man. Thank you for sharing with us and helping us to think outside ourselves. Much love.
The Butlers
Cooper is so cute. I just want to tell guys i love you guys so much and you guys are so tough i can't believe how tough you guys are. And tell britty he can come and play with me.
LOVE, Anni
You guys are in our prayers!! Good luck tomorrow, we'll be thinking about you!!
Rob and Angel, you guys are amazing! you are such a great example of strengh to us all. We are addicted to checking up on little Charlie. He has definitely touched our hearts. Thanks for keeping us all posted. Our prayers are with you especially for surgery tomorrow. Go Coop!!
I love your posts Ang! Very informative :) What are the repercussions to the surgery tomorrow? Do they think it will just be the same irritation for a couple of days after the surgery like it has been in the past, or more side effects to this one? You'll be in my thoughts all day tomorrow, and as always, love and prayers from all of us. Love you guys,
Rox
Prayers are for you and Charlie. I hope he has a calm night and that the surgery goes without complication. You are so incredible in your faith and strength! May angels continue to attend all of you!
Good luck tomorrow my little angel. I have fasted and prayed for you today and I know that everything is going to go great tomorrow. You continue to bless my life everyday even thought I have never met you. I hope you have a great night. Love the Woolstenhulme's
Good Luck tomorrow little guy. You are always in our prayers.
Thinking and praying for sweet Charlie- especially tomorrow. Thanks again for sharing his story with us all. Good luck tomorrow.
Editors note: Rob only missed one on the test and that was w/o reading any of the info or watching the video. He must be really smrt... I mean smart.
get some good sleep tonight - its a big day tomorrow for you all. it's gonna be great - we love you guys... we are crossing everything and praying for super duper cooper. xo
ps.. i am suprised that ol cowboy could do so well on a test... pretty sweet pic though rob.
Post a Comment