I got to the hospital about 4:30 yesterday afternoon and found our little guy sleeping soundly. He looked so beautiful and peaceful. Well, that lasted until about 7:00 pm and then he awoke and was not a very happy little boy. At 8:00 his meds were given including his melatonin and out he went with a few wakes by the nurse for checks, feeding and braces being adjusted. It seemed like I was in for a good night but once again Charlie let us know that he was in charge. About 12:30am (you could have called, Jill) he woke up and decided to be fussy. You see, Charlie did not receive his scheduled Clonadine at 12:00 (that is his favorite) due to a slightly low blood pressure. Charlie continued on for fussing and agitated (possibly storming) until 3:30. The nurse suctioned the mucus and then readjusted him, diapered and for the second time in the night changed his bedding as he had sweat it through - just to add to the stench. At 4:15 he finally went to sleep and at this time his is still asleep. Dr. Such-Nieber came this morning and said hat they maybe were too aggressive in giving his food too fast. They are now going to give him his five feedings a day with each taking 2 hours instead of 1 1/2 as it is now. The goal is to get them less then 1 hour or some even go to 15 minutes. Also, they will work to get his meds grouped so that they will not give any during a 6 hour period during the night. But that is the goal.
TODAY: They will try to do the swallow test on Charlie at noon today but have scheduled some PT first to see if they can keep him awake. Hoping for the luck of the Irish on that. Grandma Kathi
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I was gone all weekend with no internet and I was unable to check up on little CC. Of course I prayed all weekend for him and your family.When I got home, I was so happy to see the last few day's posts. He is looking better...especially his eyes. I am so happy for him. I am also glad to hear that he is doing better with brain function on the "rancho" scale. That is great news! Keep up the good work! I don't know you guys, but I have posted anonomously several times. Anyway I noticed a sister named Paige...did she by chance go to BYU Jerusalem in Winter 1998? If so I do know you guys! Either way, I think you are a fabulous family and my family (especially me and my little 6 year old boy) pray all the time for CC. I hope the news keeps going well. CC is always in my prays!
Good luck with today's swallow test! We are keeping our fingers crossed that it will indeed happen today. Here is to a good day for Charlie Cooper!!
We love you little buddy! Get better! Every step counts.
I love reading about Charlie's progress. He has come a long way since the first of the year. Oh my is he growing up & so very cute or is the correct word "handsome". I might mention he has wonderful parents, a loving bro & caring extended family. Way to go everyone & keep on fighting
Charlie. "Everyone loves you"
Good morning/afternoon: Missed checking up on Charlie as I have been away,but the pics tell the best story. i am glad also that you have the Brain Injury Association of Utah site on yours. If they are anything like Montana's they are awesome. Keep on trucking Charlie. praying everyday!
Just a check in.....love and prayers
I'm back from Vegas...I'm pretty sure that I left all back luck there as well as some cash. Only good luck here at home.
B
I did go to Jerusalem in Winter 98-Who are you though? It is such a small world that you would find my adorable little nephew out of all the blog pages around. You can email me if you would like to barlowpaige@hotmail.com
Paige
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