Tuesday, March 18, 2008
Good Night :)
Charlie had a good night. He settled down after his 4 hour feeding around 12:30 or 1:00 then we both went to bed. He only woke up one time from 1:00 am until now. Hurray! So that further confirms the theory that the food is what is making him uncomfortable because he didn't have a feeding from 12:00 until now. He does need to get used to the sensation of having something in his stomach so we will continue to work through this. The dotor said things are going really well and she believes he is stable enough to proceed with the G-tube placement where they will insert a short tube a few inches from his belly button through the skin and into the stomach. After the surgery he will be fed through a little "button" on his belly that we will open and insert the food when needed. The surgeon will come by later to discuss specifics and when he can be scheduled.
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19 comments:
That sure is a cute haircut Charlie got yesterday. He sure is a handsome little devil! I bet all of the nurses up there just think he is absolutely darling! Hope you have a great day Charlie!
HAPPY BIRTHDAY!!!! I hope you have a good day today and eat your favorite treats :) Love and prayers!!
HAPPY TO YOU LADY! i hope coop gives you lots of great birthday gifts today.
I'm so glad Charlie had a good night. He is looking so good and grown up with the big boy haircut. I hope when you get home you will have time to keep us up to date on his progress. There are alot of us out here that have really fell in love with this little guy, well really the whole family. I hope you have a very Happy Birthday and the best gift of all, you have your baby here getting better by the day. God Bless this family.
Prayers, Hugs and Kisses from Missouri
Happy to Angeline! Happy Happy Birthday...It's your birthday, Angel is older, yahoo yahoo yahoo! This is your birthday song, it isn't very long. Happy Happy Happy. Birthdays are fun! Happy to Angel bangle spangle langle.... Happy Birthday!!!!!!!!!!!!!!!!
P.S. No need to fret Angel, I will still leave you this birthday message on your phone as I always do for the b-day!
Shani, I need to hear that song. It might be a good one for school. Best wishes Angel. How many birthday's have you had now?
Jolene
Happy Birthday, Angel! Best of luck to you and to your sweet little Charlie!
Looks like he's improving nicely, more coughs, gags, sneezes, so why do you have to do the G-tube now? What would happen if you continue to feed him through his NJ tube for now and wait and see if he'll be able to eat by mouth in a little while?
With love from East Coast
Happy Birthday Angel!! Hope today is a great day for you and Charlie! He looks so handsome with that haircut and I love to see his eyes open so much. The boys had so much fun at your house last week and Dominick hasn't stopped talking about his "friend" Britton! Dom has been real sick with a fever and nasty cough for several days so I haven't come by to see Charlie in case I am carrying any germs. I want to come by and see him soon!
Love and prayers,
Diane
Happy Birthday Angel!!!! Charlie is really so adorable. I hope you have a good day. We are always thinking about you guys.
Sam
To the Birthday Girl!! Wish you a wonderful one with all your dreams coming true - or maybe just a calm day with plenty of sunshine. Whatever you fancy.
Lots of Love,
Stefanie
happy birthday angel. we are praying that all your wishes come true.
Looks like a great time for a family photo! Coop looks handsome as can be with his new hair cut, and its Angel's Birthday!
ooh - i call it is fam photo time as soon as rob gets back in town. i will schedule the photographer! (anxiously await my call suz)
Happy Birthday Ang!!! You will like the button. My friend's little boy had one put in 10 years ago and the liked it. Love ya Kippi and Family
Ang & Rob, I watched a trach and PEG placed in the ICU during a clinical recently and it was amazing how quick and slick the PEG placement was. No worries there.
So, it's Tuesday, did they turn on the hearing aids to see if Coop had any reaction?
Hope your happy to you day has been nice. Cheers!
Happy Bday Angel. I am sure this is one you will remember and I hope you were able to enjoy it.
Any more new on the Rancho Los Amigos score or the swallow test?
Happy Birthday Ang!
Good night Coop.
hey guys! It's Audra from the
13th ward. Charlie is looking so great! We will not stop praying for your little sweetie(and his amazing family.) I wanted to tell you Taylor has had his G-tube for almost 2 years now and it's the greatest. He also had a Nissin done at the same time so vomiting is very infrequent even with a tummy bug. And if he gets fussy we pull out the crazy big syringe. My favorite part is you can change the button at home(so long as it is a g-tube not J or GJ)
No more fluoroscopy! Anyway best of luck with everything! We'll keep checking your blog and prying for continued improvement and good news from the docs!
Hey! Obviously I meant praying, but prying might not be too far from the truth. -Audra
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