Thursday, February 14, 2008
Much Needed Rest :-)
Charlie has been asleep since 0900. I am soooo happy. I think his sleep cycles are a little screwed up but this is great. My luck he'll wake up the minute I publish this post. I think he's still on schedule for his casts today but they have been really good about not disrupting his little rest so hopefully they'll still have time. Other than that nothing new I just hope his dreams are taking him to a better place for a little relaxation, he needs it.
Subscribe to:
Post Comments (Atom)
10 comments:
valentines day is overrated, i agree, but i do like that v-day bibby... cuz i know charlie is a drooler! sammy & jane are utilizing theirs today as well. thanks suz.
i'm glad he's sleeping. don't let anybody mess with him for awhile. have super romantical dinner at the rainbow cafe. i'm sure this will be amore memorable v-day than the last several ;)
by the way, whoever asked, i did post the account information on the right side of the blog.
-meghan - charlie's aunt
i also meant to comment on what grandpa barlow (who's dang near deaf) said yesterday. i have watched him with britty, and how they communicate is awesome. i think brit and brian understand each other better than brian and anybody else. it is pretty special to watch. and i know grandpa bri and charlie will have the same bond.
-meghan
Angel and Rob, this is Steph Miles - former EMGer to the Stars (ok, just to Dr. Foley and the gang.. hah). Anyway, Jennifer called me this morning and gave me the 411 and the link to Charlie's blog. I can't believe you are living through this nightmare! Your little family is so beautiful, I'm sorry that I didn't get to squeeze those boys before your world turned upside down. You will be in our constant thoughts and prayers and we'll definitely be keeping an eye on you guys via the blog. Keep up the good work Charlie.. you have the heart of a warrior and the love of legions. - steph
'Miracle Drug' - U2
I want a trip inside your head
Spend the day there...
To hear the things you haven't said
And see what you might see
I wanna hear you when you call
Do you feel anything at all?
I wanna see your thoughts take shape
And walk right out
Freedom has a scent
Like the top of a new born baby's head
The songs are in your eyes
I see them when you smile
I've seen enough I'm not giving up
On a miracle drug
Of science and the human heart
There is no limit
There is no failure here sweetheart
Just when you quit...
I am you and you are mine
Love makes no sense of space
And time...will disappear
Love and logic keep us clear
Reason is on our side, love...
The songs are in your eyes
I see them when you smile
I've had enough of romantic love
I'd give it up, yeah, I'd give it up
For a miracle, a miracle drug, a miracle drug
God I need your help tonight
Beneath the noise
Below the din
I hear your voice
It's whispering
In science and in medicine
"I was a stranger
You took me in"
The songs are in your eyes
I see them when you smile
I've had enough of romantic love
I'd give it up, yeah, I'd give it up
For a miracle, miracle drug
Miracle, miracle drug
**Love & Prayers - Charlie's miracle drugs**
Tip
I want to thank you for the "Are we storming" segment of the blog. It tells me a great deal of what is happening. Also I am grateful for the little cries that he is doing now. Heavenly Father is watching over us all. Love ya tons, Gk
Hi everyone:My name is Shyla and I found your site through Herrin twins website. I am so impressed with the support you're giving Charlie that I wanted to help too. I can only offer prayer,but I know that is always apreciated. As a I am disability advocate also, I was moved by yourlove for Charlie so when your family is ready:here are aome websites about Sign Language!
Sign language dictionaries and websites
http://www.handspeak.com/
http://www.aslpro.com/
http://www.lifeprint.com/
http://www.dawnsignpress.com/
http://www.needsoutreach.org - Click on Deaf and Hard of Hearing, then ASL Video Library. This website has videos of signs for a variety of academic subjects. Great resource for interps for academic sign vocabulary.
http://commtechlab.msu.edu/sites/aslweb/browser.htm - ASL Browser - this is another website that has ASL sign vocabulary in video form.
http://where.com/scott.net/asl/ - this website provides fingerspelling practice in isolation
http://www.aasdweb.com/mysignlink/ - requires QuickTime - "MySignLink is an internet-based American sign language tool for Windows. It allows you to see a sign, signed definition, or picture for many English words and phrases. It currently has approximately 17,000 entries. Use it while browsing web pages, reading a book, watching captioned TV, doing homework, studying for a test, ... eating a sandwich, taking a bath, communicating with a deaf family member... . Anytime is MySignLink time."
http://www.aslpro.com/games/jeopardy/jeopardy.html - An ASL dictionary that includes signs for phrases and idioms. It also has games to improve your signing and simple tests you could use to improve daily vocab.
http://aslpro.com/ - It has a variety of links to satisfy your signing goals!
Praying for Charlie in Montana.
We are happy for every little bit of news and check the blog several times a day. You are all in our prayers. You are loved!
Thank you for all of the info about web sites for the deaf and hearing impared. I am sure that we will be referring to them often.
Hey Rob coop and angel
We pray for you constantly. Our children and my family as well and gena family. I love it when Jared calls me to help I fell like I am doing somthing. So if I can do anything call me. God bless the Jones family
I also loved the post from Grandpa Barlow. It is amazing what Grandparents will do for their grandkids. Our neighbor gave Anni the sign language ABC's today and she is excited to get started. She talks a million miles a minute....I wonder if her hands can keep up with her mouth?!?
Post a Comment