Last night was just a continuation of how he was yesterday. Heart rate in the 170-180's. He had one episode of his BP and temp elevating. They tried the ativan and morphine and they didn't seem to help much. Tylenol brought his fever down. I feel like he needs to get more sleep so his little brain will be able to heal but maybe I'm wrong.
Dr Such-Niber (Rehab) came in this morning to assess him. She said his joints are more stiff than last Thursday and she is nervous about contracture. She is going to have physical therapy fit him with some splints/casts for his ankles and wrists and also increase his tranxene today and Baclofen tomorrow. Hopefully this will help him relax a little more. If the stiffness continues then they will inject BoTox into some of the tightest muscles to paralyze them for a couple months while we work on the opposing muscles. Maybe they can use the extra to erase the worry lines that are forming on my face...
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no one wants to comment here, so i will... i say boo to the events of the night. perhaps i should come stay awhile, he was in the 140's when i was there. coincidence?
i say if the botox works, give it to him. i only hope it doesn't make him vain and want it all the time...
Terry Such-Neibar is my neighbor. She lives in the house in front of mine. She is a great lady and I feel good that Charlie is in her care.
Oh you sweet mom and dad. I keep trying to post and I have no thoughts that would make any sense. Please know how much we are praying for little Charlie Cooper and all of his extended family!! You are so brave and such incredible parents, may the Lord continue to give you strength and courage through this experience! I love ya all!
Hugs too!!
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