Today has been pretty good. He has come off the norepinepherine and his BP has remained stable. The antibiotic has been decreased to a "normal" dose for menengitis instead of the super dose he was on. The lasix is working wonders for his output. He has been peeing a lot. (He is negative 200 for those of you that want details). He is still over-breathing the vent, which means that he is triggering his own breaths and not depending on the machine to breath for him. He has done this most of the time he has been on the vent which is a positive sign that the brainstem is still sending the signal to breath dispite the swelling. His fever was up to 102.2 again but they think that is just due to the inflammatory response not the bacteria. His eyes did move around while the nurse was checking his pupils and they did move towards us (Angel and Rob) when we were talking to him. We were excited for a while, but Dr. Osguthrope told us that while his pupils are unequal he probably is not responding to our voice but the fact that they are moving side to side is good.
they put a picture of charlie on his pole so the nurses would know what he usually looks like.
hand unclenched for awhile
At about 4:30 he started clenching his fists again. He does seem to get aggitated at the same time every day. Dr. Osguthorpe wondered if it is possibly due to his natural cycle of cortisol (hormone). This raises and falls throughout the day and explains why babies get fussy at certain times of day.
one of his great nurses, christine.
so excited to see each other. Brian describing how char's fists were unclenched for awhile.
britton brought charlie a duck hat
15 comments:
I'm so happy to hear this news. we are still thinking and praying for you. go charlie!
I do not know you, but I live in Utah and I came across your blog. You are in our prayers and we are pulling for your little boy. We know miracles can happen. Our thoughts are with him and your entire family.
Hi, I am one of Teya (Chilton's) friends. She has this link on her blog and I check it regularly. You sure have a sweet and strong little boy. My little 4 year old saw me crying as I was reading some of your previous posts and I told her why and she wanted to say a prayer for Charlie right there and then. We will continue to keep him and your family in our prayers.
Angel and Rob, Ted and I are so anxious for you all. We continue to keep you in our prayers. Charlie is definitely a fighter! We are happy to hear some positive news and so appreciate your blog. We check it often and I can see improvement in his photo since the med was administered to get him peein'. You are always in our thoughts. Love, Eileen & Ted
Yeah!! That is excellent news! Jada and I did rain dances and prayers all afternoon for peeing showers and more good news! I would say that the duck hat was the best pic of the day, but Charlie looks so good it made us smile even bigger!! Keep up the fight lil man!! We love you all!
~the chiltons
Angel and Rob-
We are so happy that you got some good news. He is such a little fighter! You are still in our thoughts and prayers.
Love, Sam and Paul
Hey guys! We just heard the news. Hang in there and we will keep you all in our prayers.
Let us know if there is anything we can do to help. Jer, as you know, loves doing home improvement/building projects! He even has a handy dandy tool belt now so feel free to put him to work!
We'll keep watching and praying for more good news!
Jody and Jeremy Knapp
I bet the clenching of his fists will give him more "Chuck Norris" like muscles and strength. Besides, fighters always clench their fists.
You do not know me but I am a first time mom of a six month old baby girl. My heart goes out to your sweet little Charlie and to your family. My thoughts and prayers are with this little guy. The tears rolled down my face as I read through your updates. May the Lord bless and protect you all.
I am so glad Charlie is doing better. What an emotional roller coaster ride you have been on! I hope things continue to improve here on out. I have been checking your blog regularly for updates...and it was so nice to see a good update! (:
Keep fighting Charlie!!
Alyvia's mom
Thinking of you and praying hard. Much, much love - Glenn and Jackie McKay
We are so excited for the awesome news!! I check this hourly and was anxiously awaiting to hear about the day. We love you all so much and look forward to hear some more great news soon!!! Give Charlie a big hug and kiss from his cuz... Love, Jeff & Mitzi
Looking good buddy keep on fighting tell your dad to stop wearing your stuff he is not even as cute as you.
Lorie and I have a long list of comments regarding the duck hat that we will save for a less public forum.
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