Back from the road trip

Posted by Angel-- Charlie got back from his road trip (MRI) about 30 minutes ago. They said he was very calm and didn't need any additional sedation (versed). They take a whole team of people with them 2 nurses, respiratory therapy, resident, ect. We probably won't hear the results for a while. The radiologist interprets it and then we will hear results from the attending resident. The MRI was ordered by Dr. Russell Osthworpe (Infectious Disease) because he wanted know if there is a pocket of infection that the antibiotics are not reaching. Charlie's liver functions (blood work) are elevated so he would like to turn down the antibiotic a little to ease the pressure on the liver. If they don't improve they may change the antibiotic to one that is not metabolized in the liver. He seems to be posturing a little more but only when people mess with him. Dr. Fran Fieu said it is the only way he can express is distress. His pupils are still reactive to light- yea! even though they are slight they are becoming more equally reactive. Since Charlie is still young his fontenelles (soft spot on his head) have not closed completely. So they are constantly checking the fullness of his soft spot. It is a little full right now but not bulging. The blood work is staying constant. HR is staying within the goal range without the medications. They have started to increase his feedings with Enfamil and protein added.

He won "Hospital Bingo" today and they brought a crocheted blue and white blanket. Of course every kid that is here "wins".

Thank you everyone for your overwhelming support and love. We have felt your prayers and cannot expressed how much it means to us. Thank you so much. I will post again after the results come.