Wow!!! My little Charlie really had a great night. When I arrived here last night about 10:00pm he had just had his clonadine and Rob was cuddling him to settle him down. He was just about sound asleep when Rob left. And then into a deeper sleep he went. Around midnight the nurse and I talked and decided to wait for his usual midnight dose of clonadine. She said that since he was sleeping so well we would wait until he wakes or gets restless - maybe around 2:00am. Well my little man slept right through that and continues to sleep now. It is 9:00 and he has slept through diaper changes (both pee and poop), meds and repositioning. (He must have been really worn out from yesterday. )
Dr. Such Neibar just came in to say that they will start his feeding at full strength this morning and it seems that any time his bowels slow down, it backs up and his tummy starts hurting. So, a suppository will be given each day to make sure this doesn't happen and Little Charlie's system keeps going. This can be done indefinitely. She also said that the clonadine will be given every four hours. If Charlie is sleeping - there is no need to just give it to him. She is looking at him being able to go home "maybe at the end of the week or next week". Especially if he has more nights like last night. The family will need to sleep too.-
Grandma Kathi
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13 comments:
WOW! It must be so thrilling, and perhaps a little overwhelming, to have a go-home date in sight! Yay Charlie! Keep up the good work, all of you!
Oh wow! That is great news. So will they have to wean him from a few of the drugs first?
What great news!! I'm so glad to hear how Charlie is still taking his Charlie steps and getting better each day. You have a cute family....I sure do love your haircut Angel!
the Rapp's
YEAH!!!! Make sure that if you have any fears or questions to talk with someone. I know what it is like to want to go home so badly, but the fear of doing everything on your own and wondering if something will happen is still very real. If you need to talk, you have my email. I am so excited for you guys.
End of the week? Good work Charlie!
He is so precious....so, so, precious, I just get tears in my eyes every time I look at his sweet little face. He is just an angel!!! So happy to hear he SLEPT so WELL!!!! Oh, I hope he continues so that by the time you go home, he is all rested and on a good schedule!!!
Glad Charlie had great night! I hope he has a great day!
Angel- Thanks for the comment on my blog- so good to hear from you. Makes 7th grade seem like not that long ago! Just wanted to share that when I was putting my 4 year old to bed last night she said her prayer and said to "bless the sick baby to get better". She has seen me looking at Charlie's blog a few times. We are all praying for you.
Love, Jamie
Hooray for good nights! I hope today is good. I love your haircut too, Ang (just like I did before) :)
Love and prayers! Rox
I was blog hopping and stumbled onto your blog. I hope you don't mind. I have been so overwhelmed with emotion reading about Charlie. What a strong, sweet precious boy he is!! I have been praying for you too and hope that things continue to get better for him and your family. I know the Lord loves you and wouldn't give you more than you could handle.
Have a great night and remember we love you and God loves you...Jill B
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