Well it sounds like coop had a pretty rough day I guess he has been mad all but about three hours today but with the help of Kathy, Ann her mom some sisters and a ton of bum patting he is now sound asleep Jenny has had him off his feedings since about eight because of the huge amount of meds he gets then. Since it has been such a long day I figure he should sleep like a log all night but he likes to keep us guessing so that is what I am crossing my fingers for.
So I was talking to my geriatric sister today about this run/walk thing in may and you get a shirt for signing up but we want to make a special shirt for the people who are doing it for Charlie so we need everyone who is coming to email us shirt sizes this weekend so I can have enough time to get them made so email Susan at (amalongman@aol.com) I will make extras but please let us know so everyone can get one.--Uncle Jared
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8 comments:
I'm sorry it was a rough day! Maybe Charlie was exhausted from all the PT yesterday. I'm praying for a calm night for everyone. I'm going to sign up to walk for Charlie so I will let you know sizes. You are all so amazing! You continue to inspire so many of us!
Sharp work jay.
To the peeps who are emailing Suz: Maybe let her know who you are so Rob and Angel know how you are connected to Charlie's situation.
i hope he has a restful night after such a busy day. tell him he doesn't ALWAYS have to be the tricky kid... and snug him for me.
So do we need to sign up at BIAU also and then do they need donations or anything for this walk/run? Sounds like it should be a great event!
do you need help making shirts! I have all the goods at my house and that is something I am set up to do!!!
You have to register for the race separately from these T-shirts. These shirts are something those of us who love Charlie are wearing to race in.
when you sign up with the BIAU you will pay $20 to register for the race. You'll get a shirt with the race. IF you want a Charlie shirt you need to email suz your name and size.
I will donate money. My foot is so swollen it won't go that far.... The best I can do is swim a bazillion laps... Jill
I was just introduced to your blog and it really hit close to home. i have a 9 month baby boy. You are strong parents!! I know this isn't much of an offer, but I do castings of childrens hands and feet and I would be willing to do some for you at no charge. www.pattiesnpiggies.com. hope to hear from you soon. God Bless You and baby Charlie.
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