I apologize that our posting is becoming less frequent but it is only because we have nothing new to report. Our nurse (Dave-who really hates Nascar-to set the record straight) put the K2 logo on Coopers feeding tube tape (picture above). He had a great day with lots of sleeping and two sessions at the gym (one with PT and one with OT). I love to see him try to use different muscles.
In the second session with Lisa he worked on lifting his head by himself. Today is really the first time in a month he has had to try lifting his own head and it is really heavy. He can lift it a little if he has his arms supported on a table in front of him.
Coop also was supported while standing and did put a little pressure on the ground to help.
I apologize that our posting is becoming less frequent but it is only because we have nothing new to report. Our nurse (Dave-who really hates Nascar-to set the record straight) put the K2 logo on Coopers feeding tube tape (picture above). He had a great day with lots of sleeping and two sessions at the gym (one with PT and one with OT). I love to see him try to use different muscles. 
21 comments:
What a trooper he is! These pictures are so dang cute! Cooper you are amazing! Keep up your good week.
He's making progress and how exciting is that?! So, is he more alert and/or responsive with his eyes open, have they checked his vision, and how is his rightward gaze? I love the updates and pictures. Thanks for being so diligent about posting. :-)
No apologies necessary keep up the good work Charlie! Many prayers from Massachusetts, he has already come so far and we know he will continue to make great strides:) He really is beautiful.
Oh how sweet he is!! Is he always crying or sometimes quiet when his eyes are open? Miss you guys! love and prayers!
LOVE the pictures. i have some work to do to catch up with his gym membership.
i was telling ty tonight about how i have been cycling through stages of grief lately... and today i was super angry about coops circumstance. i was just mad. and ty tells me, quite profoundly, something he keeps thinking about. the finite mind can't comprehend the infinite.
i don't know why this is happening to him/you, but evidently there is a reason. i'm not finding a ton of comfort in this yet, but someday, we'll all understand. i think coop already does.
well put meghan, thanks for being so open with your thoughts and emotions. this afternoon isabella was acting like a 2 year old. i was getting pretty frusterated, then thought about sweet charlie and i was suddenly fine (well kinda) with her tantrum. ty is pretty smart. it is hard to think about the whole eternal perspective....but that is what it is all about.
He is such a sweetheart. I think he is adorable. Keep up the good work little man.
Oh my goodness, that is a darling sight! Way to go Charlie, keep workin' so you can keep your mom and dad runnin around in a different way:)!!
you have got to have one of the cutest boys on earth...sick or not...he is adorable...
woo hoo! That sounds pretty good to me! Love you guys!
You can really see him trying so hard. He looks great. Thanks Meghan for your thoughts and Ty for his. Coop is working so hard to get better. His body has been through so much trauma - we would want to rest for a while too.
Rox- any time his eyes are open he is crying/or starting to storm :-( When we say he is wake it just means that he is not sleeping but he is not really "alert" or aware of anything. It's been that way since we have been here.
Meg- thanks for sharing your grief cycle. It's nice to hear that others are feeling similar emotions. We love you!
He looks beautiful and only the Lord knows what the outcome will be. I, for one, have always had a hard time not telling Him what I want and what to do. It is the hardest thing in the world to feel completely and utterly out of control. I need a Ty to keep my on track. I want to control all the variables and I can't.
I don't know if any of the elders remember Uncle Wilf and Aunt Erma and Sharla. The (the kids) used to tell me that she was the greatest blessing they could ever have had. Would they have liked her healthy, of course. But putting it in the Lord's hands means we literally have to do that. Charlie is an awesome spirit and obviously he was a stronger spirit than I was. He has accomplished more in his last 10 months than I have in 56 years. God bless him.
On a lighter note, I keep hearing people who have "been there" so to speak talk about re-routing the brain and coming full throttle ( a Nascar term for Rob...eeeyyyccchhh). I hope that to be the same for Charlie, but I hope that more than anything, you guys are feeling comfort, love, and support. You deserve it, he deserves it and the Lord will not let you suffer more than you can. Hard message? Maybe, but, he knows us (all of us) better than we know ourselves.
Rob and Angel, you have become the most amazing, strong, faithful parents, friends, family member and special children of our Father in Heaven..
Have a good night... Love, Jill B
Always look for rainbows
I think he looks great...and hopefully continues that direction.
B
I loved the pictures! Charlie is so sweet. It is amazing how much support he has and his family has. I am praying that the doctors will know what to do to make the most difference. I daily pray for the guidance of the medical personnel that are working with Charlie. I pray for Rob and Angel and Grandma Cheryl and Grandma Kathy and everyone else who is involved in Charlie's life. You are such an incredible example of strength and love. thank you for being so willing to share Charlie's story with people all over the world.
When I first found your website I remember how critical Charlie was and if he would make it through. Now he is starting to hold is head up a little....this is HUGE strides.
I have faith that Charlie is going to be a powerful witness of what the grace of God can do.
It is so hard for me to see pictures of you there, and know we are not with you. I know I shouldn't feel this way but I can't help but feel like we've abandoned you. For a week I was able to join you and be a part of your real daily life. You were an amazing strength to us. I miss that. I miss seeing Charlie every day. And I miss Rob and Angel. I know that soon you will be home. I look forward to that day and we will come up and see you VERY SOON! (Without Jada ;-)
Go Charlie Go.. We are still praying for you and thinking of you daily. Keep up the good work!
It was great to see you guys on Sunday. Charlie looks great and is absolutely adorable!!!! Rob and Angel, you are awesome parents!!!!! We will probably stop by again to see you when we go to visit my cousins little boy who did end up having surgery on his eye late last night. Thanks for the updates. As you know, I LOVE to read them.
The Rapp's
A friend of mine sent me a link to your blog. I have started reading it and I have to tell you that you have shown such strength and I truly admire you. I also have a nine month old little boy. His name is Kaleb. As I look at your sweet Charlie I think about how I would feel if that was happening to me. My heart aches for you! You are all in each of my prayers. Thank you for sharing your grief and helping me to count my blessings.
The Lord can make miracles happen, my prayer is that He will do that for you.
I have been following little Charlie's story for close to a month now. I just want you all to know that not only do you have your friends and family pulling for Charlie but their are a whole lot of people like me who you don't even know pulling for him. You faith and positive attitude is astounding. You are incredible examples. You are all in my continuous thoughts and prayers.
Michelle
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