Occupational Therapy came by and did some stretching. They had him sitting up to stretch his hip joints and while upright he brought his head forward slightly on his own. :) OT will also take him to the gym later today since his schedule has freed up.
Charlie couldn’t stand to not need Infectious Disease team anymore, especially knowing that his friend, Dr Osguthorpe, was back. So he had to throw a twist in to keep them interested. Dr O said "Rinse and Repeat." We were in this same scenerio a week ago. The organism is not identified yet but they suspect it is a staph contaminant. The plan is to restart vancomyacin just incase the organism is really an infection in his brain while we wait for the subsequent CSF samples to grow for 48 hours. If they start the antibiotic today they still have Saturday and Sunday’s samples (with no antibiotics) that will tell if the organism is reproducible. There is a high occurrence of contamination with external drains but it is important to make sure.
New lounge position to force him to bend at his hips. He doesn't like it very well.
Crying while the therapist is stretching his finger joints.
Occupational Therapy came by and did some stretching. They had him sitting up to stretch his hip joints and while upright he brought his head forward slightly on his own. :) OT will also take him to the gym later today since his schedule has freed up.
Charlie couldn’t stand to not need Infectious Disease team anymore, especially knowing that his friend, Dr Osguthorpe, was back. So he had to throw a twist in to keep them interested. Dr O said "Rinse and Repeat." We were in this same scenerio a week ago. The organism is not identified yet but they suspect it is a staph contaminant. The plan is to restart vancomyacin just incase the organism is really an infection in his brain while we wait for the subsequent CSF samples to grow for 48 hours. If they start the antibiotic today they still have Saturday and Sunday’s samples (with no antibiotics) that will tell if the organism is reproducible. There is a high occurrence of contamination with external drains but it is important to make sure.
New lounge position to force him to bend at his hips. He doesn't like it very well.
18 comments:
I LOVE seeing pictures of the little man. And I doubt I am alone! Thanks for sharing. Is it wrong that I think he looks so cute with that grimace on his face????
Oh, it's good to see pictures of him....breakin my heart though:(. Hope results turn out ok. LOVE the house! Praying for you everyday!!!!
Once again, that is one beautiful child. And I don't know Ty or Jada, but you have been so good to Rob and Charlie, I will add Jada to my prayers. I would anyway, but it is nice to be able to help those who support your loved ones.
We all need to watch Saturday's Warrior. I have thought about it a zillion times since I started teaching (31 years and the lead was a guy I taught). I have been able to see the ones that the Lord has sent to us for that purpose. And Charlie is one of those and I know little Jada is too. Look what good they have done for us. Look what sacrifices they have made for us. I am grateful to them for the blessings they have given me over the last 4 weeks..
Love You, Jill B
i also am a big fan of the pictures of charlie with a sad little face, i'd be mad too charlie...keep working hard!
Oh my gosh - he is seriously so adorable. You have a darling little boy there. Breaks my heart to see him crying and uncomfortable.
What a cute kid. He has come a long way and I'm sure will slowly but surely continue that direction.
That picture of him with his feet up just cracks me up. Anything to help huh?
Tell Charlie not to complain too much about the lack of be bed space and weird sleeping positions...it could be worse...he could have a pregnant wife!
B
He honestly looks so good! He is so cute! I think I would be a little ticked if they wanted me to sleep all weird! I love the sad face! Keep fighting Charlie, you are such a strong kid!
So a friend had posted some information about Charlie on her Blog and I have been following his story. Can I just say was a precious little boy he is. Our prayers are with him. Keep fighting little one, this too will pass!
Oh, that little face at the end is so tender. Charlie is such a beautiful and strong child who inspires me to be grateful and the best mom I can be every day. I haven't seen either of you (Rob and Angel) in years but everyone I know who knows you says the two of you have been pretty unbelievably strong. My thoughts and prayers are with you both,
Amanda Calton (Mariotti)
Rob and Angel, I just found out about little Charlie. I am so sorry to hear about this! He is a beautiful little boy! He is so sweet! I can't even imagine what you guys are going through right now! You and Charlie are in my thoughts and prayers!
Hillary (Haslam) Coombs
Missouri still thinks this little guy is very handsome no matter what face he has on. We are still praying for Charlie and his family everyday. Stay strong, and keep the faith.
Love & Prayers from Missouri
love you guys. Thanks for sharing, now I want to see if the exercise ball puts him to sleep again!
PS, I'm praying for Jada too, Troy!
he is so cute
I love that last picture. Welcome back Dr. O.
Sorry to hear about the surgery. Better safe than sorry though. The pictures are great.
Andrea
I love seeing pics of cute baby. He's so adorable. What are his reactions to physical therapy? Does he seem to enjoy the swing like he fell asleep on the ball?
-Sara L
To Charlie's friend Jada, I tried to submit a message to you on your Guestbook, but it wouldn't let me. It is amazing to be able to share in these beautiful children's travails and be able to pray for them...
JIll B
you know i would cry to if someone was stretching my finger joints
Post a Comment