Charlie has pretty much slept all day so he can stay up all night to party with Rob. He has only been awake a couple times today and then gone right back to sleep. We had good news this morning about the cochlea looking good but the CT also showed something in his left ear that could be an ear infection. It was a slim chance because of all the antibiotics he has been on but Dr. Harlan came to check it out anyway. He had to dig out quite a bit ear wax but then found that it must have been just fluid not an infection. Yea! He only woke up a little when he was digging in his ears but then went right back to sleep. We are starting to use a great invention called a versa-form pillow that conforms to any position including sitting and then cradles Charlie’s body to hold it there. It looks really comfortable and it can keep him bending his joints instead of stiffening/posturing so much. He is scheduled for neurosurgery at 9:30 Monday morning and we will consult with the ENT surgeon regarding the implants. Monday will be a busy day for our little man. (Angel)
5 comments:
Sounds like he is getting the sleep he deserves. I am glad to hear about his ears. I hope it all runs smoothly and you can get home soon. Love you.
Stefanie
Well no wonder why he slept all day... He looks SO COMFORTABLE in that pillow. WOW! I am so glad to hear things are finally turning around for you guys. Good luck Monday and I cant wait for an update!
that is a sweet pillow and he looked so chill in it today. i have been so excited about the implants all day. we'll say some extra prayers tomorrow to prep for the big surgery monday. love you guys...
Good night sweet baby.....
this is awesome news, we will also send up extra prayers for charlies big day on monday. we love you guys!
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