Coop is having a nap right now while Meggie is doing some rocking. He has had some PT this morning in his room in an effort to learn to live without the gym. Last night our little man was able to hurl (threw up) to the end of the bed so Auntie Susie is going to get a bath on the afternoon schedule. Grandma Kathi reported that his tummy has been a bit rumbly today so we are grateful for the venting tube. The goal is to blow this joint tomorrow afternoon, but we aren't going to get too excited yet as Super Cooper has a way of doing things his way!
Thanks for all the prayers and support. Keep your fingers, toes, (and maybe eyes) crossed that all goes as planned.
--Auntie Susie
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20 comments:
WAHOOO! I'm so excited that you get to go home! I'm crossing everything in hopes that nothing will go wrong!
Our thoughts and prayers are with you in hopes that all goes according to plan!! Happy Birthday Coop.
GOOD LUCK TO YOU AND YOUR FAMILY!!!
Charlie, You have touched so many hearts and I thank you for sharing your story with us. I wish all the best in the world and pray everyday for your recovery. Best of luck Charlie and God Bless you and your family.
Congrats!!! I know things will continue to get better, with your faith and the prayers of many...you have been on my mind and in my prayers constantly since I first found out about this. I will continue praying for you, stay strong buddy and take care of that little man, he is doing great!!! Trent Jackson
Oohhhh! Good luck you guys. I know you are going to have your hands full but PLEASE update as soon as you can. Especially about the eye exam....
Thanks and good luck and Happy Bday Charlie!!
Glad to hear it. Small steps but good steps.
B
Good job Coop, way to show your strength. We are so proud of you and your progress. We will be keeping everything crossed I hope you get to go home tomorrow. Good Luck.
I have though for many days since discovering your blog, of how I could possibly begin to describe the impact your dear Son has made on me. My thoughts are always with you and I pray there will continue to be an outpooring of miracles on little Charlie. My heart aches for him and has left me with new impressions on how precious life is. I hold my little 6 month old longer these days and don't take for granted the little things. Thank you for continuing to share his story.
I think I might have a headache from crossing my eyes too long! I am so excited for you to be able to go home and I can't wait to come visit again. I love you guys.
that's amazing...i'll even braid my hair and make it cross! yeah i am that big of a dork!!! Cooper, I have never met you and probably never will but you are amazing...you have made me so grateful for life and for my dear children...your parents are truly blessed and your mother suits her name well...and angel on earth that god sent down to watch you...
I agree with the comment from "stakersensations"....your mother suits her name...ANGEL!!! So perfect. We have our fingers cross.....we pray that everything goes well with you Charlie. Can't wait to hear more about Charlie when he goes home. God Bless, love the Paddocks!
that staker comment made me cry.....so true. Love and prayers with everything crossed! Rox
Good night, Charlie One more day!! I am soo super excited for you.I am reposting acomment I left earlier for Mom &DAD!!I hope Mom and Dad will cuddle you so mch
Hi Angel: Charlie is so special and you are right he is so handsome!!You are very lucky to have 4 very special men in your life!! ( God,Rob,Britty and Charlie) I will continue my prayers daily after you leave PCMC!
As an advocate for people with disabilities,i have to say that you are doing amazingly well. Teach Charlie the skills to be amazingly great boy and man!! Give him the tools to deal with his "new" normal. While you and Rob may get frustrated by the new
advocacy and bureaucracies that you are dealing with, Charlie and Briity are so worth it!!!!
Here are some resources for you
Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
Utah Department of Health
Community and Family Health Services
Children with Special Health Care Needs - BWEIP
P.O. Box 144720
Salt Lake City, UT 84114-4720
(801) 584-8226; (801) 584-8496
Email: sord@utah.gov
Web: www.utahbabywatch.org
Utah Center for Assistive Technology
500 South 1595 West
Salt Lake City, UT 84104-5238
(801) 887-9500 (V/TTY); (888) 866-5550
Web: http://www.usor.utah.gov/
Utah Community Center of the Deaf and Hard of Hearing
Utah State Office of Rehabilitation
5709 thSouth 1500 West
Salt Lake City, UT 84123
(801) 263-4860 (V/TTY); (800) 860-4860 (V/TTY, in UT only)
Division of Services for the Blind and Visually Impaired
250 North 1950 West, Suite B
Salt Lake City, UT 84116-7902
(801) 323-4343
Email: bgibson@usor.utah.gov
Web: http://www.usor.utah.gov/dsbvi.htm
Love to the Christensons! Shyla From MT
You are keeping this quiet from Coop, right? He gets a little tricky with notions like these. Good luck tomorrow, it will be so great, he'll love his new everything and love being in his home with his family.
I am so happy for all of you. Thank you for sharing your story. The Power of Prayer is so strong in large numbers. This reminds us all to be humble and to cherish every moment of life. Happiness to you and your family. Thank you again. Kim
Ok, that comment got me too....
Good luck today guys and update when you can! I know you'll do so great!
good for you guys. here's hoping all goes well for you tommorrow.
good luck charlie.
That is awesome that Charlie gets to go home! Even though I don't personally know your family, I have been following your blog from the beginning. Your little angel has really touched me and makes you see what is really important in life.
Way to go Charlie. Rob and Angel thanks for sharing your precious little boy. We will continue to keep him in our prayers. Good Luck Please keep us updated.
God Bless you all.
Linda
To see how the story of charlie has developed from being a healthy bright eyed little ball of fire, to being brought down to the edge of mortality and the fight he has given to come back to where he is now is absolutely miraculous. I am so glad you have shared his story with us. For someone so small to have to go through so much, he is lucky to have such a wonderful family to help him through the difficult times ahead. If only all children with difficulties or handicaps could be so lucky. Hope all goes well today, and the fingers and toes are crossed.
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