Charlie had a fairly uneventful night. He mostly slept with a few wakes for meds, diaper changes and mucus suction. He had a great gag this morning at the 6:00 suction. The nurse and I were very impressed - open mouth and all.
Dr. Such-Neiber came by this morning and said that they are working on:
- Getting Charlie's meds grouped together
- Starting Bolus feeding (feeding all-at-once instead of continuous feeding)
- The ENT will be working on fitting his aids to see if he can tolerate something in his ears or maybe some hearing.
- She ordered a new kind of splint for Charlie's hands. They will be more like gloves. His boots are working great on his feet.
- The swallow test will be done today. that is putting fluid in his mouth while a live ex ray machine sees what is happening. We have seen him swallow some.
- She might have the test done again on his sputum to see about the flu results. She thought that it was "odd" to have it come back positive and she would like to see Charlie be able to leave the room for various things.
Charlie has been awake for 3 1/2 hours and he has been very calm and putting up with all of the pokes and probes from all of he nurses this morning. Now he has gone to sleep and resting peacefully.
I love that kid!!! Grandma Kathi
P.S. Rob, your friend, Dave, is Charlie's nurse today.
Subscribe to:
Post Comments (Atom)
8 comments:
Glad to hear little Charlie had an night with some good sleep. He is seriously sooo dang cute! That little face just melts my heart.
Question about the 5K run.... can I do this specifically in Charlie's behalf or is it just an event? Do you know what the cost is? I have tried to get this information but have not had any luck. We would really like to do this for Charlie if it is possible. Thank you.
Glad to hear little Charlie had an night with some good sleep. He is seriously sooo dang cute! That little face just melts my heart.
Question about the 5K run.... can I do this specifically in Charlie's behalf or is it just an event? Do you know what the cost is? I have tried to get this information but have not had any luck. We would really like to do this for Charlie if it is possible. Thank you.
I believe the 5K run is just an event, however, we have talked about making T-shirts for all of us to wear. The cost is $20 and that includes a T-shirt. They have food and a radio station and a silent auction at the finish line. I'll try to find out if we can do it in charlie's behalf.
Jolene
Thank you for the information Jolene!
Wow, that is all really great news. Sounds like you could get quite a few answers today and things are moving in the right direction so you can finally get outta there!
Yahoo! I think it has been awhile since the ENTIRE update on Charlie has been positive! I love you Charlie Cooper. You are such a big boy!
Let me know if you want help with tee shirts--I have a great screen printer that we can talk to about working out a deal.....
I am so excited about Charlie's gag; that is really such great news! All the progress Charlie is making is wonderful. We keep you in our prayers constantly.
-J Sharp
Post a Comment