Wednesday Morning

We are still in the PICU because Charlie continues to have what they are now calling thalamic storms and they want to get those under control before moving him to another unit. They have increased the Baclofen and his hands and feet are a little more loose than before. He has been calm all morning and I held him for a couple hours. He still is not opening his eyes much or doing purposeful movements. Physical therapy came by and assessed him. They gave us some exercises to do so his joints don't become too tight. Dr. Ampollo(Infectious Disease) came by and said they could take out his ART line to decrease the chance of infection. So now he is down to only one IV and a feeding tube. I am mostly curious about what the neurologist has to say. So far only the neurology medical student has come by.