tag:blogger.com,1999:blog-1674238462214247115.post7667301986879943641..comments2023-10-30T04:21:05.238-06:00Comments on Charlie Cooper: Update Finally!!!Charlie Cooperhttp://www.blogger.com/profile/12674412999767983874noreply@blogger.comBlogger33125tag:blogger.com,1999:blog-1674238462214247115.post-35702313027736024932008-10-14T01:07:00.000-06:002008-10-14T01:07:00.000-06:00My name is Diana Lee and i would like to show you ...My name is Diana Lee and i would like to show you my personal experience with Botox.<BR/><BR/>I have suffered with migraines and neck pain for many years. Botox has given me my life back. I have arthritis in my neck and Botox is the ONLY thing that has given me relief.<BR/><BR/>Side Effects-<BR/>None…miracle drug<BR/><BR/>I hope this information will be useful to others,<BR/>Diana LeeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-41309084800964376412008-09-18T12:21:00.000-06:002008-09-18T12:21:00.000-06:00Hi Angel,I left your home yesterday uplifted I kn...Hi Angel,<BR/><BR/>I left your home yesterday uplifted I know that sounds strange considering your son is not at all in the condition you would like but I felt a Spirit there. Your son is fulfilling a calling that we may not understand in this life. He is a true treasure. <BR/><BR/>A the same time my heart just aces for you and the daily emotional roller coaster you must be on as a mother. I am overwhelmed by your positiveness and your strength. I know you just want to protect your little guy from ever germ on the planet, but I want you to know that if there ever is anything I can do to help you out, I would be honored.<BR/><BR/>My prayers - everyday, for as long as you need them!<BR/><BR/>Janene1384 nhttps://www.blogger.com/profile/10106656881995808232noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-52441726505408515642008-09-16T17:55:00.000-06:002008-09-16T17:55:00.000-06:00I am so sorry to hear about the spasms and I hope ...I am so sorry to hear about the spasms and I hope that the therapy (injections) work well. Thank you for highlighting the good things that you've noticed - I am very happy to read about him eating baby food and sucking on pretzels. That's great. The video was heartbreaking, but I have to say that it was wonderful to see Char on film. It allows someone like me feel as if I know him personally. He is the sweetest little boy and I loved seeing his sleepy face at the end. <BR/><BR/>-A friend in NCAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-91187550804984315882008-09-06T21:08:00.000-06:002008-09-06T21:08:00.000-06:00just a little reminder from auntie meggie to remem...just a little reminder from auntie meggie to remember charlie in your fast and prayers tomorrow. there is power in prayer and in numbers and charlie could use some of our faith right now. love you little man.Meghanhttps://www.blogger.com/profile/00400470597751777763noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-33036128930814651402008-09-05T19:45:00.000-06:002008-09-05T19:45:00.000-06:00One step forward and two steps back, it must seem ...One step forward and two steps back, it must seem like! But it seems like all in all he's heading in the right direction. Sorry about the seizure like activity, that must be so frustrating! We're thinking about you.Jessicahttps://www.blogger.com/profile/12451004130807372086noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-74738937272807658492008-09-04T08:01:00.000-06:002008-09-04T08:01:00.000-06:00Dear Char: Thank you for showing me yet again that...Dear Char: Thank you for showing me yet again that I need to be patient and wait in life even from my wheechair. This week has been hectic in my job and at my house too.It is definitely Not as hectic as mommy or Daddy's or even yours,but... I know Mom is worried about your spasms lets hope they subside a lot, I still have spasms and I am grown up. I think Mom is also worried that your PT has Plateaued. Maybe that is true,but your Spirit has not. We will wait and see. I know all the People who are going to fast and Pray Sunday love you alot.Shyla in MTAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-33102109548579049582008-09-04T00:42:00.000-06:002008-09-04T00:42:00.000-06:00Hey Angel and Rob,What precious little babes...the...Hey Angel and Rob,<BR/>What precious little babes...they are both so beautiful. We will be fasting and praying for you on Sunday...you continue to be in our thoughts, prayers, and hearts.<BR/>MeganMegshttps://www.blogger.com/profile/06379569865429572790noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-91528776416422485152008-09-03T19:34:00.000-06:002008-09-03T19:34:00.000-06:00Thank you for the update. We're praying for more C...Thank you for the update. We're praying for more Charlie Steps forward and a "boring" cold and flu season.Stephhttps://www.blogger.com/profile/02763656326887345908noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-51970378063384936752008-09-03T09:23:00.000-06:002008-09-03T09:23:00.000-06:00I love you Ang!! I am so impressed with the way t...I love you Ang!! I am so impressed with the way that you make sure that things happen for Charlie. You can see how much your family means to you and those around you. I wish i could be there to help you. Just know that you are in our prayers and we love you dearly. If you need anything let me know.<BR/><BR/>StefanieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-14837303783171300302008-09-02T21:43:00.000-06:002008-09-02T21:43:00.000-06:00thanks for the update ang. britt and char are luc...thanks for the update ang. britt and char are lucky to have such a smart, sweet momma. obviously that is where britt gets all his smarts. we love you charlie, hang in there. we are praying and fasting for you.lindshttps://www.blogger.com/profile/12136910580159217466noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-70903398820996264792008-09-02T17:52:00.000-06:002008-09-02T17:52:00.000-06:00The seizures are so scary. My now 6 year old daug...The seizures are so scary. My now 6 year old daughter started having seizures when she was just 13 weeks old and had hundreds of them before they got them under control. We too, had the phenobarbital,and we also had tegretol. Happily she was taken off her meds at 5 years of age and has been great ever since.<BR/><BR/>I pray that your sweet Charlie will outgrow his seizures and that until he does, that meds will control them. It is a trying time for the entire family. You guys are doing great. During those quiet times that seem to be the hardest sometimes, remember that your little guy is in there just waiting to come back out and play. <BR/><BR/>I know that you probably already do this but...stimulate him, expose him to many different things to help bring him back out.<BR/><BR/>Good luck and know that you are in my prayers. <BR/><BR/>Oh...I also wanted to comment on the picture of Charlie and Britt laying side by side, their profiles look so much alike!<BR/><BR/>From a friend in Erie, PAAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-57274140166451216302008-09-02T11:47:00.000-06:002008-09-02T11:47:00.000-06:00Thanks for updating...believe it or not, there is ...Thanks for updating...believe it or not, there is still a large crew of people around the globe checking in on your family and Charlie. You guys are always in my prayers....and I hope that you have some good news with the new hormone therapy, and I second what another post says...if there is anything the community of people who care can do, please let us know! Keep fighting Charlie!<BR/><BR/>Love,<BR/>Leane Vandeman and family in Los Angeles!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-87236474702810854272008-09-02T11:12:00.000-06:002008-09-02T11:12:00.000-06:00That was a great update! I cant believe how big he...That was a great update! I cant believe how big he has gotten too! What a doll. Angel you are one tough cookie but you are also so smart and way to be proactive about the seizures!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-72008010478167736172008-09-02T10:44:00.000-06:002008-09-02T10:44:00.000-06:00Sorry that you are going through this. Hope things...Sorry that you are going through this. Hope things get better soon. I know what it is like to have to give your child injections. We had to give Kayden growth hormone injections and iron injections. He knew exactly when he was getting the iron injections. That was one injection that was very difficult to give to him and luckily we don't have to do that any longer. Good Luck and you are in our thoughts and prayers.Tammyhttps://www.blogger.com/profile/10512732222769887062noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-9947162287607575752008-09-02T05:17:00.000-06:002008-09-02T05:17:00.000-06:00Angel I have pictures of Rob Cheering on the Utes ...Angel I have pictures of Rob Cheering on the Utes in his "UTAH FOOTBALL" shirt at the Big House! That's right un-photoshopped true Ute photo's. Ok he may have only been cheering on Paul Kruger. But he was in fact wearing a Utah Football shirt, and it was GLORIOUS! Photo's will be well worth the viewing! I think we will wait until he goes out of town to release them so he can't remove them from the blog! ;)<BR/><BR/>Thanks Angel for letting him break away, and spend the weekend with us! He is without a doubt one of my most favorite individuals to spend time with! Everything is more fun with him around! Sitting at that game with Rob made my month! I love you guys! -Troy-The Chiltonshttps://www.blogger.com/profile/16288088115315680850noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-82199736350124300612008-09-01T23:55:00.000-06:002008-09-01T23:55:00.000-06:00Coop! He can't just be textbook can he? Next Sun...Coop! He can't just be textbook can he? Next Sunday, check. I love seeing his cute face with Britt. I agree with whoever said they are communicating somehow - Britt is a special kid. I have a surplus of hormones, do you think I can sell mine for that much?whithttps://www.blogger.com/profile/00976740500522804905noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-23970604948742409662008-09-01T23:18:00.000-06:002008-09-01T23:18:00.000-06:00Hunter had infantile spasms for almost a year. In...Hunter had infantile spasms for almost a year. In the midst of changing, increases, and tweaking with meds, we did ACTH twice. I would love to give you my 2 cents on the ACTH. Too much to write in a post. Give me a call if you want. 801-636-3825. good luck with everything. I was with Hunter at Primary's for three days last week. We started him on a new diet, called a ketogenic diet to try and help control his seizures. Seizures are very frustrating sometimes. I want to know how you got an EEG machine at home, that is not fair at all... You must have connections. We have been battling seizures for two years now, and have only recently reached out to get opinions through other people who deal with what we do. Every kid seems to be somewhat different, so you never know, but it has been nice to bounce stuff off others. It was nice to read the update, glad he is doing well with eating and his vision.<BR/><BR/>Bryson Bennett<BR/><BR/><BR/>It is a good thing that the Lord gave us husbands for things like ACTH injections. Hunter was seizure free on ACTH-that has never been duplicated by another med. Good luck figuring that one out! Charlie is so sweet. Love, Emily BennettEleyna Juliahttps://www.blogger.com/profile/02379604559812569177noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-6533087630486552252008-09-01T23:07:00.000-06:002008-09-01T23:07:00.000-06:00I am there with you on fasting next week. I alway...I am there with you on fasting next week. I always love having something special to fast for and nothing is more special than sweet Charlie! I continue to pray for all of you daily. I wear my bracelet all the time to remind me of your strength and courage. I will send Grandma Cheryl my story about the Charlie bracelet in China. I promise to take some time this week and type it up. It is a story that will remind you of how special your family is to many of us. I pray for peace and comfort for all of you.<BR/>ConnieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-18730848434827064592008-09-01T22:40:00.000-06:002008-09-01T22:40:00.000-06:00I'm so glad that you updated! I think of Charlie ...I'm so glad that you updated! I think of Charlie often. I'm sorry to hear that he'll have some more challenges to overcome, but try to think 6 months out...it helps me. I have an 8 month old daughter who had bacterial Meningitis at three weeks of age. Charlie's story and hearing about the both of you help keep me going when I'm feeling worried about Katie. I DO plan to write a proper messsage giving my story and telling you why exactly Charlie has impacted my life. Just give me some time. Babies, so much work. :)Kristinehttps://www.blogger.com/profile/13994083459235522823noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-8212137442775481732008-09-01T21:12:00.000-06:002008-09-01T21:12:00.000-06:00Hey Ang and Rob, I just want you guys to know how ...Hey Ang and Rob, I just want you guys to know how much we love you and you are always in our prayers. Zak said he sure enjoyed Rob in Michigan. I am glad he was able to get a little break. Ang if there is anything I can do to help you out let me know. I am sure you hear that all the time, but even if it is just a little trim on the boys, I am here! Love you guys!!Peterson Famhttps://www.blogger.com/profile/15629876256743163875noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-33876882613601261322008-09-01T20:13:00.000-06:002008-09-01T20:13:00.000-06:00I second Meghan's comments about the weight gain -...I second Meghan's comments about the weight gain - though he must get that from Rob, because you, my dear, are a golden wisp of sunlight (nothing personal, darling Rob)<BR/><BR/>Doesn't it always seem like life is a little good with the bad? I too will pray that Charlie's little system will be bolstered and that he will soldier on through this tough time. Ang, I hope we can still go out this month and that time will be a little respite for you in some way.Amandahttps://www.blogger.com/profile/07661333151535289209noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-790622633751072442008-09-01T20:10:00.000-06:002008-09-01T20:10:00.000-06:00Thanks for updating Ang. I love this little boy. I...Thanks for updating Ang. I love this little boy. I really liked the picture of Britton and Charlie at the top. It almost looks like Britt is wordlessly communicating with Charlie. You can tell just by the way he looks at him that he loves Charlie and will always have a protective bond with him. I agree with the fast. Strength in numbers. Love you all. Very much!Shanihttps://www.blogger.com/profile/08744850744835894001noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-31785445599719878592008-09-01T18:58:00.000-06:002008-09-01T18:58:00.000-06:00Charlie you are a fighter, keep it up little man. ...Charlie you are a fighter, keep it up little man. I am excited to hear about the vision? That is awesome. I love the picture with him and his big brother. You can tell they have a true bond. It will be fun to see how the BYU season goes. Keep up the great work Parents. You and your family are amazing people.<BR/><BR/>Love,<BR/><BR/>The Bountiful FamilyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-7982246201705012742008-09-01T18:18:00.000-06:002008-09-01T18:18:00.000-06:00WOW I can't believe how much Charlie looks like Br...WOW I can't believe how much Charlie looks like Britton in that first picture. I love the picture by the way it is ADORABLE! Hang in ther Charlie and family I know you can make it through this. All of us here in Oakley will be fasting for you and I will ask EVERYONE I know to fast as well. Hang in ther we LOVE YOU SO MUCH.<BR/>The WoolstenhulmesThe Woolstenhulme Familyhttps://www.blogger.com/profile/02612387559560243610noreply@blogger.comtag:blogger.com,1999:blog-1674238462214247115.post-67287374570374435342008-09-01T15:55:00.000-06:002008-09-01T15:55:00.000-06:00Hang in there ! ShylaHang in there ! ShylaAnonymousnoreply@blogger.com